Posted 8/20/2007 7:12 PM (GMT -6)
Chaya..... I know hearing the diagnosis can be bittersweet. It is a relief to have someone validate the fact that you truly are sick but then comes the dealing with it.... I know what that is like. It took me about 3 years to be accurately diagnosed. I was bounced from Dr to Dr and then finally someone was willing to give me the diagnosis. Now I have been dealing with the ups and downs of the disease. I have had some issues with the medications. This site is truly a wonderful place to find support and information. I was relieved to know that I am not crazy and there are other people out there that experience alot of the same things that I do.... Hope you are doing well!
SLE diagnosed 2003, Pulmonary Embolism 2002

Plaquenil 200mg 2xday, Coumadin 15.5mg alternating with 17.5 mg per day, Cellcept 500mg 2xday

Posted 8/21/2007 2:21 AM (GMT -6)
at least you know ... now you can plan a course of action and attack. at least you know you're not a hypocondriac and you're not crazy.
Take care,
Diagnosed with lupus in May 2005
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)

Posted 8/21/2007 4:05 PM (GMT -6)
Hi, Chaya. I second what everyone else has said about finally being diagnosed. It was SO nice for me actually having all my crazy symptoms come under one title. I had several misdiagnosis' that ended up costing me a good-sized chunk of completely unnecessary money that could have gone far toward the valid treatment of my disease! Just don't make the mistake that I made, by thinking that because they have diagnosed you, they'll know how to fix you. Unfortunately, that was disappointment #2 for me! As you will read on many posts here, there are all kinds of things that can come and go at any given time with this stupid disease. Just be glad you have found this place! You can come here and vent, discuss problems you're having and possibly even find the help that you need with something you're dealing with. You will certainly find people in the same boat who more than understand what you're dealing with. I'm sorry that you have sick children on top of your diagnosis. Just try to take it one day at a time. That's all we can really do.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

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