Hugs to you firebabe. We really do understand what you are talking about
Check out the thread titled "Lupus Resources" at the end of my signature there is a link. In that thread, about
three posts down, there is a list of suggestions all the members have compiled. It might be helpful.
Also . . . when someone asks me whats wrong, I usually tell them that "My immune systems attacks my healthy tissue, this disease is called Lupus" That way, they really do have a clue as what is going on. If I say Lupus first, they seem to zone out and not even here the immune attack portion of the sentence. Then if they ask any other questions I'll answer . . . if not, it is a nice short answer to their kind concern.
Glad you found us. If you have any questions be sure to ask and the members will really try to help you.
In His Grip,
AlwaysRosie "We can't control the waves, but we can learn to surf!"
Co-Moderator Lupus Forum