Posted 8/22/2007 11:41 AM (GMT -7)
Carol, Not to pry, but you latest symptoms seem to be more like scleroderma. The CREST is a version of it but I believe it can move its way up to classifying as systemic scleroderma. Just my thoughts on it. All my reading points to the lungs as one of the main target areas. Also there is sine scleroderma, I don't think the skin gets involved in that one. Sounds like you have all the symptoms, but I don't recall you saying any thing anything about the tightening of the skin or ligaments. Not that you would want it, trust me. Do you have rheumatism? I see the osteo. and I believe that may be part of it too. Is your rheumy well versed in scleroderma? It seems so tough to differentiate between lupus symptoms and scleroderma symptoms with regards to organ damage. I have overlap symptoms too sometimes and it is even more confusing than it was prior. Hopefully they can get it narrowed down for you. I never did any testing for the scleroderma. That, and I only had skin and ligament symptoms for one year and it upped and dissappeared on me. I hope it never returns. Let us know how it goes - Big Hugs - Kristin
Dx: Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.