Posted 8/22/2007 6:23 PM (GMT -6)
Darlene, I'm especially glad that you have a good rheumy who will get you in when you're having more problems than usual. I hope you can tolerate the additional plaquenil and that the amitriptyline helps as well.

You talked about Barbara Lee and about reflecting on all she's going through. I wonder if you'd judge her if her house were a mess. Would you really expect her to be up cleaning her house till everything was spick and span? We're all so hard on ourselves but so understanding of each other. I so understand what you're going through. I hope all of us here can help you give yourself permission to stay in bed and play nintendo and take a well needed break from life until you feel like coming out from under the covers. And to do it without feeling guilty. You body needs the rest.

Barbara Lee is such a dear and so are you. I'm glad she's able to help you. It's great that you were able to vent. I've found that writing has a real healing effect on me and I should do it more often. I hope you fever goes away and that your pain subsides. Take good care of yourself Darlene. We love you.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Posted 8/22/2007 10:24 PM (GMT -6)
Hi Darlene, I am so glad you were able to get into your doctor and have a productive experience. I hope these meds work out for you. I have to agree with Patty, She's a pretty smart cookie! Give yourself a break. Order pizza and grab the paper plates.
I have been know to hire someone to come in for a couple of hours twice a month when i am not well enough. Usually a friend that doesn't expect a lot. It used to be really hard to let someone touch my house but when it took me 4 hours to mop a kitchen floor and I was wiped out by the time I was done my pride got pushed away. It's gets down to what is practical. Like I said that's 2 days a month. The other 28 days I just say the heck with it. Of course I'm single and live alone but I was married with kids and I know there is a big difference. Just give yourself time to heal. The dishes will still be there when you feel better.
Let us know how the meds are working
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

Posted 8/28/2007 7:10 PM (GMT -6)
Darlene, Havn't heard from you in a while. Have you had any success with the new med? I know it's hard to feel good about yourself when you feel so crummy but I hope you are beating the pants off those nintendo games!
love ya
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

Posted 8/28/2007 7:53 PM (GMT -6)
Hi Darlene:

First off (((((gentle hugs))))) for you. Honey I'm so so sorry I didn't see this sooner and respond quicker. I've kinda been in my own little world and I'm sorry I wasn't here right away for you. I'm so pleased you were able to vent here and let us know how difficult things are right now.

I agree with Patty you don't need to worry about your house. You need to focus on keeping yourself in a safe zone health wise. I know how difficult C-diff is. Have they tried to do a antibiotic taper on you? That's how they got rid of my C-diff. I sure can relate on the fibro pain and feeling out of sorts. I'm not sure if this will be much help or not, but your hubby being cranky is ok. My hubby does everything around our home, and there are days that I know he hates that I'm sick. I in the end know though, that he's alright with it. Our wedding vows were in sickness and in health till death do us part. If the roles were reversed our spouses know we'd be handling things for them.

Don't beat yourself up about the video games. Sometimes our pain is so bad, we'd loose our every loving minds if we didn't do something to distract us. I say you keep on playing that game and let it help ease your mind a bit. The world isn't gonna stop cause the dishes aren't done. I'm guilty of the same thing feeling like a looser because I can't keep up with the house and such. We can only do what we're able to. Honey you're doing the best you can, that's good enough for now.

I hope that your Rheumy did something to help you and that you're feeling a bit better now. Please when you have a chance let us know how you are. Know that we're here for you and love ya. It's hard to be this sick it truly is. Just rest and take care of yourself. The rest will follow on another day. I know cause it's that way in my house. There's always tomorrow.

Hugs to you,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

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