Chaya, I can't add much to what the others have already said. I also want to tell you not to worry about
posting too much - you can't post too much here. I think anytime someone is first diagnosed you have a million questions which then leads to a million other questions, not to mention the emotional rollercoaster ride you just hopped on.
If 10mg of prednisone isn't helping then hopefully your rheumy would be willing to try you on a higher dose. They want to find the lowest effective dose.
The others are right about
the raynauds - it's nothing to mess around with and your rheumy should know that your other doc thinks you may have it. It can usually be managed but it can be serious at times.
Hang in there. Being is constant pain is really terrible, especially if you are feeling hopeless about
relief. It can be hard, but if this keeps up, continue to call your rheumy for treatment options. I don't have experience with cortisone shots, so I can't offer any thoughts about
We're here for you through all of this. You are among people who really do understand all of these frustrations. I'm sending you lots of gentle ((((Hugs))))
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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