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Regular Member

Date Joined Jun 2007
Total Posts : 51
   Posted 8/24/2007 12:40 PM (GMT -6)   
Hi all, Have any of you been to a neurologist? Iv been in a bad flare and after long yrs of seeing my im doc ( saw rheumy he just did his thing and sent me to my im doc yrs ago) but I just had a ct of my head as I was having mean headaches and blurry vision etc.  went to er all they did was give me ativan and hydrated waste of time really,  but having shaking and weak legs too, I dont have an appt with the neurologist till 7th of sept. but my doc is trying to get me in sooner, its so frustrating we even upped my prednisone and did not help much......... .  Anyways Im sure the neurologist will do more testing but just wondered if any of you have been to one and was it worth it ?  

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 8/24/2007 2:21 PM (GMT -6)   
Hi Jonny,

I do see a neurologist for peripheral neuropathy and migraines. I think its worth it to see him. If you can get answers or at least try, anything is worth it. Headaches are their specialty so they will definitely will look into the cause and your blurry vision is something that you need to look into right away. You may want to consider in addition to see an opthamologist because some medications can cause eye problems, most notably Plaquenil. Hope you can get in to see him sooner. Please keep us updated on how it goes.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 8/24/2007 2:47 PM (GMT -6)   
Jonny, I've seen a neurologist for several reasons. First was for double vision, the second time was for peripheral neuropathy, and most recently for muscle weakness. When I went the last time I told him that I just wanted to rule out anything neurological that might be going on with me. I figured that my legs were weak because I've been so inactive for a couple of years and he performed an EMG which came out negative. It was a relief to know that there isn't anything neurological going on, and sometimes it's worth ruling out these things.

Good luck with your appointment. It sounds like you're having vascular headaches, and they can be so painful. I hope the ativan helps.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Aug 2005
Total Posts : 590
   Posted 8/26/2007 7:45 PM (GMT -6)   
Hey Johny,

Just a thought, the neuro could help with the double vision, but besides an opthalmologist, depending on what the neuro finds, you may end up needing to see a neuroopthalmologist who deals with the nervous system and eyes together. If you do have lupus in your nervous system, prednisone is known not to help, but the neuro can make the diagnosis if it is sometimes. You just may need more suppression until the flare is over too. Hope you feel better soon.

sle 99 w/cns/autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency 4/07. Meds are baclofen 40 mg, prenatal tabs, potassium, calcitriol 50 mcg, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, percocet, sjogren's stuff

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