Cathy - just wanted to say you are in my prayers. This stuff gets very scary sometimes. I get freaked out a lot too if there is something not quite right with the major organs. It is normal. Until you hear from a doctor and sometimes a second opinion from another doctor, we really don't know what to expect. The not knowing is the scariest part, I need the feeling I can do something about it. I am sure you will handle whatever comes your way. You are still here, and at worst, they found the cause of your symptoms. There are a lot of things they can treat, even with the brain.
I wish you the best and look forward to hearing how it goes - remember we will be here for you. Hugs - Kristin
Dx: Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.