Hi Barb, that's a drag about the stronger pain drugs. That's ridiculous. I mean at what point do they want you to get to get more? I mean if you can handle all the suffering, you ought to be able to handle the stinking meds. When are they going to do something about the clot, besides giving you coumadin? Can they take it out and get that over with at least? I totally understand your frustration. When I got very sick from interferon becuase I was misdiagnosed and they gave me an immune "booster" when they knew I had autoimmune problems, and I just wanted to rip myself open from stem to stern. I itched to my very core, like the itching you get from restless legs or something only all through my body and I was very nutsy and sharp objects and things were hidden from me. I'm permanently screwd from that interferon. I can tell you I got through it with stadol nasal spray. Stadol is a non-addicting morphone type drug that is used for short term anesthesia and in the nasal spray format it is killer for migraines but is very very very strong, like IV morphine and after three months straight on it, I was able to toss the bottle. It gets you pretty "out of it" but mostly out of pain. Most docs don't know that there is such a thing. It might be something to ask about if you are really having some serious pain. You can use it when you want, then not when you don't need it. I got to the point where Ihad to law down the law, if they wanted me to keep on, which I wanted to do for my kids, then they had to do something to improve my quality of life, end of story. There is no excuse. There are plenty of pain things out there if they would get off their arrogant butts and get on the net and do a search, or even talk to other collieges. I just get mad at our attitude about pain relief in this country. It really irks me. But maybe ask about the stadol nasal spray. It feels like going on a rollercoaster a bit because it works instantly, the meds go right to your brain, and I was pretty messed up but definitely in a better mood! I sure hope they get you past this clot stuff soon, like how much do they want to pile up on you? I was glad to hear from you and I hope you feel better and get something to help you through, and know that you are in my thoughts and prayers.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments