Posted 8/29/2007 12:29 PM (GMT -7)
Well, its been a few months now since I first went to the dermatologist to repigment/even out pigment and to also investigate my red face. From my experience, I learned that:
1. Protopic is a very strong cream
2. protopic works ok on new vitiligo, does not even out hyperpigmentation, causes the edges to darken around vitiligo patches but often very little of the patch itself colors in or fades.
3. Does not seem to work on old vitiligo.
4. Does not seem to work on pigment changes that may indirectly be caused by endocrine stuff
5. My red face that is not raised, is not from roseacea, but AI disease
6. Roseacea cream did help some with my deep pore problems, at night taking the red from my face but by morning I was red as a beet.
7. Might be preventing more spider nevi on my face? Have no clue.
8. Now I have made contact with a dermatologist to take care of the spider nevi when they get bad enough.
9. On spots protopic helped, they came back when I stopped using it.
10. In some places, protopic seemed to make my vitiligo worse, at least at first.
So, I've made contact, and now I will have more supporting evidence for a diagnosis. I don't know if I will bother to depigment so I match all over because I will likely have to apply the depig cream my whole life long. The cream is a quinine based cream like plaquenil is quinine based pill, and I don't know how much quinine a person can safely have in their system. Apparently, quinine is a very strong skin and hair depigmenter. It may be appropriate for some very dark patches, like I have on the edges of my face and some other areas (hyperpigmentation) and I know the lightening creams work, so if you have the hyperpigmentation, that's definitely worth asking about.
Anyway, for anyone with pigment issues, here's my summary. Not real hopeful, but I guess the protopic stuff works for some people's vitiligo.
I still think going to the dermatologist was good, I tried my best and so did he and I'm more educated about what's going on with me.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments