Welcome new member Gagirl

I just wanted to welcome you, Gagirl.  She posted in another thread about a lupus awareness and it turns out that she is the person who the article is about .  Gagirl said... Thank you for your support of the article on Lupus! It is hard to be clear with a reporter in just a few minutes, on such a complex disease but I did my best. I take 24-26 different medications for the treatment of Systemic Lupus and Sjogrens, some more than twice daily. In addition to that regimine I take supplements that are safe, tylenol, vitamins, etc. It is expensive and I have to rely on samples, as I am in the GAP with Medicare D. I am so thankful for the healthcare that I have received and thankfully SS came through before my ex-husbands COBRA ran out. I have not had significant gainful employment in well over a decade. I was able to travel with the Lupus foundation and show the massive amounts of pills, inhalers, etc. that I have to administer each day. I went and looked my best for that day to demonstrate that Lupus and other auto-immune diseases does not always "look sick."  I don't know how much of a difference it made, but every voice helps. I encourage anyone able to write to your political leaders or to become an e-advocate for this dibilitating disease. I was also invited for an interview for "Focus Atlanta" in March with Keisha Williams, a rotary club in GA, my local town publication, and neighborhood newsletter. When I am able, will talk to anyone that I can on behalf of all lupus patients and hope I always represent us well. I also have herpes zoster, severe osteoporosis needing Forteo injections, heart, lung, neurological involment, digestive/stomach, fevers, severe fatigue, depression, daily neuralgias, migraines, TMJ, cataracts, chronic pain, the lupus "brain fog" fever, and on it goes.... I better get to bed. I am thankful I found you all. Regards. Gagirl1. Also, here's a link to the article (it's a very good story) http://www.cherokeetribune.com/articles/2007/03/09/307/10250555.txt Thanks for helping raise awareness.  I'm so glad you joined us and I hope you'll continue to post here.  Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums

Welcome Gagirl. Your stand to spread lupus awareness and the fight we have each day is impressive! I hope that you will feel at home here in this forum and share with us all. It is very comforting to have a place where you can come and share your experiences and gain insight as well as helpful information from people who live with the disease and all the problems it gives.

---

Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

Hi GaGirl, Welcome to the forum!!! I posted more in the other thread about the article. So glad yo found us.

Blessings!

---

In His Grip,

AlwaysRosie          "We can't control the waves, but we can learn to surf!"

Psalms 139

 

Co-Moderator Lupus Forum