Welcome new member Gagirl

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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
 		   Posted 8/30/2007 7:26 AM (GMT -6)   
I just wanted to welcome you, Gagirl.  She posted in another thread about a lupus awareness and it turns out that she is the person who the article is about. 
 
Gagirl said...

Thank you for your support of the article on Lupus! It is hard to be clear with a reporter in just a few minutes, on such a complex disease but I did my best. I take 24-26 different medications for the treatment of Systemic Lupus and Sjogrens, some more than twice daily. In addition to that regimine I take supplements that are safe, tylenol, vitamins, etc. It is expensive and I have to rely on samples, as I am in the GAP with Medicare D. I am so thankful for the healthcare that I have received and thankfully SS came through before my ex-husbands COBRA ran out. I have not had significant gainful employment in well over a decade. I was able to travel with the Lupus foundation and show the massive amounts of pills, inhalers, etc. that I have to administer each day. I went and looked my best for that day to demonstrate that Lupus and other auto-immune diseases does not always "look sick."  I don't know how much of a difference it made, but every voice helps. I encourage anyone able to write to your political leaders or to become an e-advocate for this dibilitating disease. I was also invited for an interview for "Focus Atlanta" in March with Keisha Williams, a rotary club in GA, my local town publication, and neighborhood newsletter. When I am able, will talk to anyone that I can on behalf of all lupus patients and hope I always represent us well.

I also have herpes zoster, severe osteoporosis needing Forteo injections, heart, lung, neurological involment, digestive/stomach, fevers, severe fatigue, depression, daily neuralgias, migraines, TMJ, cataracts, chronic pain, the lupus "brain fog" fever, and on it goes....

I better get to bed. I am thankful I found you all.

Regards. Gagirl1. :-)

 
 
Also, here's a link to the article (it's a very good story)
 
Thanks for helping raise awareness.  I'm so glad you joined us and I hope you'll continue to post here. 
 
Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
 		   Posted 8/30/2007 7:38 AM (GMT -6)   
Welcome gagirl :-)
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


http://www.healingwell.com/donate

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sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
 		   Posted 8/30/2007 10:49 AM (GMT -6)   
Welcome Gagirl. Your stand to spread lupus awareness and the fight we have each day is impressive! I hope that you will feel at home here in this forum and share with us all. It is very comforting to have a place where you can come and share your experiences and gain insight as well as helpful information from people who live with the disease and all the problems it gives.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1950
 		   Posted 8/30/2007 11:03 AM (GMT -6)   
Welcome GaGirl, you have found a really good group of people here and hope that you find a way to pay for the meds you need and that they get your disease under control.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
 		   Posted 8/30/2007 6:57 PM (GMT -6)   
Hi GaGirl, Welcome to the forum!!! I posted more in the other thread about the article. So glad yo found us.

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Clickable Links:   Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
 		   Posted 8/31/2007 9:18 AM (GMT -6)   
Hi Gagirl, Just wanted to add my welcome to the group as well. I know you have already been posting and have seen what a wonderful group of people we have here. I look forward to getting to know you.
Again Welcome
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
 		   Posted 8/31/2007 10:02 PM (GMT -6)   
Welcome,
Glad you found us! We all need each other and need to stick together so we can be heard!

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

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