Firebabe, this is such a hard issue for all of us, especially since it's hard to have a healthy relationship with people who don't believe us or who don't take the time to understand us. After having been sick for two or three years I don't bring anything up anymore. When I'm asked how I'm feeling I answer honestly and tell them I'm having a great day and feeling better or I'm having a bit of a rough time right now, but things will improve. I'm very conscious of never complaining or of acting as though I'm looking for attention. But I don't make apologies when I'm not up to doing anything. This is my life and I deal with it the best I can. If someone doesn't understand, that's their problem. My mother had lupus and I believe that has helped. She was a sweet and generous woman who never complained about anything and everyone knew that she was sick. I believe that has helped my family understand that I'm not making this up. There are also some pharmacists in the family - my stepson, my son's fiance, and my dad was also a pharmacist, and they know the strong meds I take.
I believe one of the best ways to handle people who are skeptical is to not become defensive or try to go into too much detail. The spoon theory is a great way of explaining lupus but you'll still find skeptics out there. I loved what Lynwood said and agree with her that some people aren't going to change no matter how much explaining we do.
I hope you can find peace with the people in your family. I know I'm especially grateful for my HW family who always believes and supports me.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin