Carol, it's funny that you brought this up because I was thinking some of the same things this morning. I used to be really good about
paying our bills on time and keeping our checkbook balanced and now I just let those things slide because I don't want to do them and some of our bills end up getting paid late. I keep telling myself I'm going to stay caught up on those things better, but I don't do so well. Like Rosie said, food is another issue and also shopping is another one for me. If I have the energy to shop I love to buy things. I don't go way way overboard, and I use everything I buy, but I probably enjoy it a little too much. I think the food and the shopping are because those are two things I can still enjoy when lupus has taken away so many other things in my life.
When I first got sick, I remember not feeling like myself at all and it was so hard to explain. IT was like I would see myself in the mirror, but I felt like I was removed and it felt very weird. I felt like I had to try very hard to still be myself and to act like myself. I kept asking my husband and my mom if I seemed like myself. I also had a much shorter fuse than I had ever had and I snapped at my kids way more than I ever had before. Over time all of that has gotten better, althought there are still days I am kind of short tempered. I'm thinking that somewhere along the line some of the meds I've been on have helped me feel more like myself again.
It is a hard thing to explain, but I do hope you'll talk to your new rheumy about
it when you see him. Hopefully it will be something as easy as a med adjustment. Hopefully it won't take too long to get it figured out and that there won't be a lot of trial and error.
Love and hugs
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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