National Invisible Chronic Illness Awareness Week

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Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 8/30/2007 10:30 PM (GMT -6)   
I just ran into this online. Some of you might be interested.

September 10 -16 is National Invisible Illness Week

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 8/30/2007 11:07 PM (GMT -6)   
Lynnwood, LOL I love that site. I want that Tshirt too. The 10 things you never say to someone with an invisible illness. My best friend has Lukemia and she has to do infusions every 3 weeks to try to build up her blood. I want to get her one so she can wear it to the hospital. I have a few people that I am going to send this link on too including the pastor.
I'm gonna check it out some more and send the link to some people.
thanks again
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
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Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 8/31/2007 6:49 AM (GMT -6)   
I'm actually laughing Lynnwood . . . I thought it was a joke and then I saw that there really was such a website . . . too funny (and sadly necessary).
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
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Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 8/31/2007 8:00 AM (GMT -6)   
Thanks Lynn!!! Cool stuff :-)
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Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/31/2007 9:02 AM (GMT -6)   
Thanks Lynnwood. I'd like one of those shirts too. I'd also like to get some lupus t-shirts too. I hope this gets at least some coverage or attention. I know that lupus gets very little attention during it's awareness month and it's national day.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined Jul 2007
Total Posts : 261
   Posted 9/1/2007 1:53 PM (GMT -6)   
Thanks, Lynnwood. That looks like cool stuff! I'll share that website at my "local" lupus support group meeting this next weekend coming up.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

Regular Member

Date Joined Aug 2007
Total Posts : 31
   Posted 9/3/2007 9:09 PM (GMT -6)   
I am still laughing about the "No More Casseroles" book. I got tons of chicken casseroles, lasagna, bagged salad and brownies to last forever. Just to think someone even gets that is too funny. I felt guilty and like I was not being appreciative. when I just simply could not eat what was sent.

People around me at the time responded when my "invisible illness" (Lupus/Sjogrens) showed because of high doses of steriods and injections. I has on a heavy dose of prednisone during one bad patch and if I even looked at the casseroles I would start to swell.

Thanks for the link to the web site.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 9/4/2007 7:38 PM (GMT -6)   

Tks Lynn,

   I really like the site.  I think I will give it to the doctors I work for.


 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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