Alwaysrosie, I live 40 minutes from Cleveland. If you decide to walk let me know. I would love to meet you. I think what is so hard for me is that I have not had the guts to go to a support group yet and meet others with Lupus. I really need to. To meet other people with lupus in person will be very emotional for me. My husband and I are going to walk together. I hope your son does great with his marathon. My husband and I wish him lots of luck. It's wonderful he's running. You are very blessed to have a supportive son.
Bill have a great time in you walk. That is great on how much you have been able to raise.
Gagirl, thankyou for the reminder about the camera. And all of your advice is great. I'm so glad that your seeing good results from Fosamax and you can exercise again. YEA!!! I was nervous about the walk and didn't think about just enjoying the day. I used to be thin and such a work out type of person. I guess my old attitude is still here. It's like ok 3 miles how fast can I get it done. I don't have to do that. I can just walk at my own pace and enjoy the day.
hippimom, I know exactly what you mean about running marathons. I used to be so active and I loved to walk miles and miles. Now I get tired going from the car to the house. I have been taking short walks getting ready for the walk. I really want to participate. Sorry to hear that your son has arthritis. Mine has mild CP and autism. And we are trying to decide if he will walk or pull him in a wagon. His legs get tired. Now I feel really enthusiastic too. I think this walk will be really good for me and my family. It feels so emotional.
THANK YOU EVERYONE FOR THE SUPPORT!
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil, NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.