Hi, Lion. Thanks for your reply too. It's nice to have someone else dealing with this very same thing to talk to.
I have gotten very frustrated over this just recently. I actually changed my rheumy to the one I'm now seeing, although there were several other problems as well. I really feel like my rheumy should take charge of this since it is his prednisone Rx causing the problem. After my most recent appt., I feel like he definitely knows there is a problem. I will certainly talk to him about referring me to a endocrinologist if I become unable to control my #'s with my diet, or if my fasting #'s start going out of the normal range. I'm doing pretty good the more I learn about this stupid glycemic index and really control my portions. As I more fully explained in my previous post, my rheumy will be doing that A1C test regularly now. I can even call him if I feel like there's a problem and he can order the test for me to do right then. I really don't feel like my PCP has a good handle on lupus, so I try not to discuss lupus related problems with him. Fortunately, I was able to get all of my supplies refilled yesterday, so that helps.
I didn't realize you only took the prednisone once a month. I don't think I've ever heard of that before. I'm not sure how your adrenal and associated glands respond to that one.
I don't think my #'s are going high enough to really effect the way I feel. I've spoken with a couple of people I know who have diabetes and that's what they asked too. My #'s are doing pretty well now that I changed what I eat. If they are out of the normal range, it is only like in the 130's, very rarely now in the 150's. If it does that, I immediately decide either not to eat that anymore or do some modification. I've kept a journal of my meals and the #'s they give me since I discovered this problem, so I know a lot of things I can eat without any problems now. It's just a long learning process. I think I am actually feeling better since eating healthier though.
Not meaning to change the subject, but I noticed you have listed "constipation" as a problem you also deal with. I have had an extremely bad time with that over this past year and a half! I passed blood for over a month and a half before on my own stopping the Nabumetone that I felt like was contributing to the problem. Sure enough, the bleeding stopped; but I still had the constipation. I was having to take an expensive fiber supplement as well as stool softeners (which still didn't always take care of the problem--I would go for several days without a movement!). I just started using milled flax seed as a supplement in August and I have completely eliminated the fiber! I will soon start trying to leave off the softeners to see if it has also relieved that, but I am doing SO much better in that embarrassing dept. The flax seed offer Omega 3's; they have anti-inflammatory properties as well.
Sorry this is SO long. I just wanted to touch on everything. Take care,
Always looking for the silver lining, Sharen
SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg