Barb, I'm sorry things are still so rough, although I know that sadly things are probably going to continue to be rough for you. I know I've said it a lot, but I wish there was some way to keep you more comfortable so at least you'd get a little relief once in a while.
Thanks for asking about
my son. Since being on long term antibiotics to treat his strep levels/rheumatic fever, he has longer stretches of feeling pretty good, but still has flares. He gets labs done every two months and his last round of labs still didn't look good. He continues to have high levels of inflammation and docs are now thinking that he probably has both reactive arthritis due to strep and an underlying connective tissue disease or juvenile arthritis. He's been going through a rough period lately and we just took him to urgent care yesterday where he was diagnosed with walking pneumonia. He's really prone to both pneumonia and strep, but it amazed me that he got pneumonia while on antibiotics. He gets sicker more during the school year because of everything the kids at school pass around.
It was so nice that you asked about
my son because I feel like, for me, I have this wonderful forum to come to and deal with my own things related to lupus but I don't have much of a place to go to talk about
my son's health problems and a lot of that really weighs on me.
Try to take care of yourself as best as you can. Do you feel like you are getting settled into your new home? We're here for you Barb and please don't feel like you have to suck it up for us - we want to be here for you.
Lots of love and hugs
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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