Thank you for your input. Still in some pain today. Seems to get worse at night for some reason. Stomach swelled up like a balloon again last night. Saw the nephrologist today and he thinks my kidney is okay and that it isn't Lupus Nephritis yet. Unfortunately I can't think well today, I kind of go in and out of it. Therefore, I didn't get to ask a lot of questions. Basically he said that since I have a negative double stranded DNA test, I cannot have kidney disease. It is now probably something to do with my bladder and I should see a urologist. I'd say that is B.S., but I am not a kidney doctor. I bet $10 bucks the urologist says kidney disease. This is usually how the game is played. Sorry, very sarcastic today, my way of screaming I guess. Trust me, I am very happy NOT to have kidney disease, but still feel it was dismissed a little to easily. At least I am not in the danger zone yet.
For some reason for 10 years I have had tests with protein, blood casts, High ANAs, etc. and all of a sudden EVERYTHING is negative. It is a miracle I tell you. Now all of a sudden I'm cured. Tell that to my body this past week. I just wish someone would shoot my butt and put me to pasture. At least someone said something about the valve sclerosis. Figures it was a nephrologist intern (my PCP still has't called me). They think it is lupus, scleroderma or a mixture of three diseases. Which I guess clears that up for me, until next week when they tell me nothing is wrong with me and I'm just being thin-skinned again. No tests though, just more heart medication. Why does the nephrologist give you heart medication? Why is my head still spinning? This is the reason why I give up. Who can stand this for any duration. It has been over 10 years! One doctor diagnoses lupus another takes the diagnosis away like candy. Back and forth. What do they want an autopsy first? News flash...something is wrong here. Wonder why I have anxiety at times. Go figure. Well, I think I'll go bang my head against the wall now. (kidding). Thanks for listening - Kristin
Dx: Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.