Posted 9/5/2007 11:38 AM (GMT -6)
Hey Des . . . information is power . . . its always scary doing the initial search and then, it seems, the more you can narrow it down, the more help the information becomes. Hang in there!!!

In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
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UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
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Posted 9/6/2007 1:55 PM (GMT -6)
Hi, Des. I had an eye problem stemming from my taking the Chloroquine. That med had to be stopped. But, *Good News*, since stopping the med; the problem has not reoccurred. What was happening to me was not considered to be typical either. (Tell me this...Why do they think they can describe things as TYPICAL for a disease SO TOTALLY ATYPICAL???) I only have eye sight in my right eye already due to third nerve damage from my head injury that effected the vision in my left eye. I may have already went over the exact details of what happened in an earlier post (can't exactly remember?), but parts of my field of view were completely blacked out (And this happened while I was driving!). My Optho. was left scratching his head. I'm sorry if you do have to stop the Plaquenil since you were getting benefits from it. I know the pain of having to try other meds to find something to replace it. Maybe it will work out quickly for you though, IF it ends up being necessary. The main concern is protecting your eye sight! Keep us posted.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

Posted 9/6/2007 7:43 PM (GMT -6)
Hi Des,
Sorry to hear about your eyes and I hope it is something that can be fixed by discontinuing medication. You might want to check your other meds too, some meds, like anticonvulsants and neuropathy stuff can have effects on your eyes and it would be good to make sure its the right one, maybe it is something else that won't be such a big deal to change. Well, just hopeful anyway. I know lots of those meds effected my vision and I had to discontinue them. I hope the good optho figures it out and everything turns out to be reversible. Will be thinking of you and praying for you.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 9/7/2007 4:24 AM (GMT -6)
If it is any consolation, I was on Hydroxychloroquine for a while and it started affecting my eyes. I stopped taking it and my eyes got better. Then I found a homeopathic remedy that works for my joint pain even better than the Hydroxychloroquine ever did. The homeopathy is nice because it doesn't have side-effects and I only need it once in a while, not all the time. The name of the remedy is Causticum. You can look it up on I have no financial or other interest in this company other than being a satisfied customer. BTW, I get my Causticum from a local health food store.
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?)
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.

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