Just Joined!!! - What are these Red Dots !! they HURT!

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New Member

Date Joined Sep 2007
Total Posts : 3
   Posted 9/5/2007 3:46 PM (GMT -6)   
Hello Everyone , this is my first time joining any forum. I have been reading everyones comments for the last 2 months and I think its about time to be apart of the group. I got diagnosed with SLE 3 weeks ago :o(.. and right now am on prednosine and planqunil...Im 22 years old and I was shocked when i found out , im still really :o(....but i have to think positive and things will eventually work out and i can beat this!! But I am gonna go get advice from another rheumy cause i think getting a second opinion is always good.. Anyways for the last week I have been going through a Flare-up and I'v been in bad bad condition. The medication that my doctor gave me isnt taking away all the pain . Iv developed red dots like 5 big ones on both my elbows and 5 around my right knee.. When u touch them it hurts, they are making sleeping and any kind of movement difficult .. What the hell is this?? I read something about Boils .. is that what this is?? HELP

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/5/2007 7:41 PM (GMT -6)   
Hello Hope and welcome to the forum sis!!

Call your doctor first thing in the morning. You really didn't give enough information about the dots to help you know if they are a boil. There are some blood factor deficiencies that can cause red dots and your doc can do some simple blood work to confirm (but those type of dots aren't painful). He would be able to look at them and tell you. Make sure to call tomorrow so you can see him before the weekend. You might even stop into his office and show the nurse. Boils would be painful so that is a possibility but they would be raised.

The others will post soon and some of them might know more about your spots . . . but DO call you doc first thing in the morning.

Welcome to the forum!!

In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
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Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 9/5/2007 8:13 PM (GMT -6)   
Maybe hives?

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
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Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 9/6/2007 7:21 AM (GMT -6)   
Do they last for a long time, or do they go away?  Do they feel sort of like a bruise?  I have gotten a really red splotch on my elbows and sometimes on my knees, but it usually goes away in a day or so.  It does cause a little pain, but not more than an average bruise.  I have no idea what these may be. 

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 9/6/2007 2:41 PM (GMT -6)   

Hi Hope,

   Welcome to the forum. I hope you have called or seen your doctor about the painful red dots. I haven't had any painful red dots before. Please let us know what you find out and take care.


 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Regular Member

Date Joined Jul 2007
Total Posts : 261
   Posted 9/6/2007 2:50 PM (GMT -6)   
Hi, Hope and welcome! Unfortunately, I'm not familiar with the type of red spots you've mentioned. I would definitely call my rheumy rather than have to be in pain or aggravated all weekend with them though! My stupid stuff loved to pick on me near the end of the week all last year and after a few times of suffering through the weekend, I learned quickly...it is better to just call!!! You might mention to the rheumy also about your pain not being completely controlled yet. Take care and let us know.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

Regular Member

Date Joined Sep 2005
Total Posts : 250
   Posted 9/11/2007 4:38 AM (GMT -6)   
What are boils?
It's not shingles, is it?
Take care,
Diagnosed with lupus in May 2005
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)

Veteran Member

Date Joined Jan 2007
Total Posts : 607
   Posted 9/11/2007 7:27 AM (GMT -6)   
Are they kind of like brusises? I think you need to call your Rhumty ASAP.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/11/2007 8:13 AM (GMT -6)   
Hi Hope and welcome. I'm so gald you decided to join our wonderful group. I'm sure you saw from reading the posts, that this a a very supportive group. I'm sorry to hear about your diagnosis - it really is a shock when you first find out you have lupus and there is a lot to take in. I don't know much about the red dots, but I agree about calling your doc, especially since it is a new symptom and is so painful. Let us know what you find out.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined Aug 2007
Total Posts : 39
   Posted 9/11/2007 8:46 AM (GMT -6)   
Hi Hope. Sorry to hear about your diagnosis. In one of my flares I got red itchy patches. They would just start off as itchy and then form into little red spots, or big puffy spots. It was hives. No one has any idea what causes it, but a zrytec every night take cares of it. I'm not sure if thats what you have because other than being itchy, they're weren't exactly painful.

Take care, keep us updated!
Diagnosed SLE 2002, Raynaud's and Hives 2004, Lupus Nephritis 2007
cellcept, prednisone, plaquenil, zrytec, cozaar, nexium, furosemide, oscal + d

New Member

Date Joined Sep 2007
Total Posts : 3
   Posted 9/13/2007 12:42 AM (GMT -6)   
Hey guys sorry about the late reply just been so busy with school. I went to the Rheumy today and I dont like him at all .. he just wants to get out of the room as soon as he can. I showed him the dots and he really didnt know what they were... i suggested that they maybe boils from the prednosine and he said they might be.. after a frustrating visit i went to my family doctor to vent and basically told him im not satisfied with my Rheumy..he told me maybe i should see another specialist instead. I showed him the dots which are now just bruises .. so yes Omega they are bruised...but my doctor thinks it has something to do with my blood vessels . I dont have them now but when i get flare ups they come back.. so next time i go i will keep u guys posted ..

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 9/13/2007 8:00 AM (GMT -6)   
You may want to call your pcp if you are required to get referrals through your insurance and see if they can give you a dermatologist referral. Sometimes rheumys can identify typical Lupus sores but unfortunately what we get on occasion is not always typical. The only bad thing is it can take a while to see a dermy which means ironically you have to hope the rash stays. You can always ask them to call you in the event of a cancellation but I think you should maybe take pictures also just in case.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/13/2007 9:34 AM (GMT -6)   

I am so tired of doctors rushing us out. I'm so sorry Hope. We wait so long for our short appointments and then to have them dismiss us is too much. I'm glad you are going to find a different rheumy. I like to be fair to these docs but some of them are just . . . urghhhh!!

Glad your family doctor was caring. Des is right . . . always take pictures of odd things. I've heard many stories here from members who were taken seriously because they had photos of their rash or mouth sores.

In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Inflamatory Bowel, Inflammatory Arthritis
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