My last rheumy visit was on July 26th and everything went fairly well. I decreased my Cellcept due to my WBC being low and my hair was falling out at an alarming rate. So my rheumy decided to cut back on the Cellcept from 5 capsules twice a day to 4 capsules.
Which I do believe I was taking too much. Because since the decrease, the hair loss has slowed down and I'm actually getting a few baby hairs coming back in. From my lab results, my WBC is back in normal range and just over all improvement in the rest of my labs.
I saw my rheumy today and we discussed the treatment plan for the month. Originally, I am supposed to get my rituxan treatments this month as well. She's actually going to a seminar tonight to discuss rituxan and learn any advances or updates on it. So she didn't want to schedule it just yet, just in case there might be any new clinical studies or information regarding the treatments since it's still all fairly new.
So, she was going to call and update me if she finds out anything new. Or else we might just hold off. But since my labwork was looking okay. We are going to try and taper the prednisone again. Which I have to admit that I'm a little nervous about.
I'm currently at 7.5mg and we're going to try 5. But I've never been able to tolerate 5mg at all. The last time I tried, I was so sick that couldn't eat or keep any food down not even water or else I would throw up. It was horrible, but once I bumped it back up I was fine. So I'm keeping my fingers crossed that I can tolerate it. I just haven't had very good past experiences getting down to 5mg.
I also visited my ophalmalogist yesterday about the chronic chalzions that I get. I saw him a few months ago and got the kenalog shots on my eyelids to see if it would help. The one in my left eye completely disapeared and the one on my right eyelid remained. So I went back to try the shot again to see if it'll help.
Instead of one shot, he ended up doing three injections in hopes to aleviate the chalzion. It may take 2-3 weeks for me to notice any significant difference. The shots hurts like hell, but if it works it'll be worth it.
So, all in all. I'm hanging in there and I'm just keeping my fingers crossed that everything goes well with the tapering prednisone, chalzion on eyelid, and of course I'm hoping all those baby hairs are here to stay and it continues growing!!
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:
Cellcept 250mg/4 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 7.5mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day, Midrin as needed for migraines, Magneseium supplement daily
-Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.
-Rituxan infusions twice every six months in March and September