I'm sort of in the same boat, but my ai problems are the result of liver problems and past interferon treatment, although I had ai problems before that, interferon is a very very powerful immune booster and it made my ai much much worse. Because my ai disease is secondary--caused by other illnesses and the interferon rather than genetic, I don't have like the ds-dna, just speckled ANA and no ssa-ssb, though biopsies confirmed sjogrens. If you give someone enough interferon, a substance that your body makes to fight infection, you will develop ds-dna and full blown lupus, so if this is true, then it follows that ds-dna is something that may show up as your disease progresses, and my rheumatologist believes this might be true in my case, but then I am a special case--in more ways than one, LOL. I also have hashimotos and fatty liver and arthritis and IBS so all these things cluster together and I don't think they know all the different syndromes that cause all this stuff. I'm having severe gut problems now and I can so so feel for you in that regard. I hope that you feel better and keep trying to get answers, its all you can do. I've been struggling for over 14 years now and am just beginning to see the illness come into bloom, unfortunately. I just wonder how sick I have to get before they get a handle on this stuff. I'm sure you feel the same way, and it is so frustrating. Well, know I am thinking of you and wishing and hoping for you to get a speedy dx and the treatment you need!
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments