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Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 9/6/2007 5:38 PM (GMT -6)   
Hey y'all.  I'm sorry I disappeared for a while.  I have had an unbelievable flare for a couple of months.  I have been place on cyclosporine since I 'failed' cellcept.  I have been battling cerebritis,  joint pain, fever, and active lupus nephritis.  If the cyclosporine doesn't help my doc is going to do IV treatments of rituxan.  I'm praying the cyclosporine works.  I now take cyclosporine, plaquenil, imuran, prednisone, protonix, toprol xl, vasotec, lasix, lopid, zetia, procrit, Bactrim ds every mon, wed, fri (preventative), pacerone, procrit shots twice weekly, aspirin, Boniva, Zemplar, omacor, clonidine, and lexapro every day!  This doesn't include prn drugs.  I can't believe how aggressive this disease has become in my life.  I am fighting with disability.  My medical leave is about to run out and I will loose my insurance.  There is no possible way I can afford theses meds without insurance,  I am struggling with the insurance. 
Sorry this is so long and whiney!  Just a little overwhelmed.  I have also developed knots on my wrist.  Has anyone else experienced this?
Hope you all are doing okay.  I covet your prayers.  God Bless you

Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 9/6/2007 6:59 PM (GMT -6)   
Judy, I am sending you lots and lots of (((((((((((HUGS)))))))))! Can you feel them? Rosie posted a link recently about changes in how to qualify for disability with lupus and it sounds like you might need to find an attorny if you haven't already to start the SSI application process. I will keep you in my prayers!
Audrey Ann
Lupus and RA and LOTS of Medications!


Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 9/6/2007 7:48 PM (GMT -6)   
  ((Hugs)) Bless your heart! It sounds like your going through the ringer! I sure hope things turn around for you soon. Hang in there and take care. You will be in my thoughts and prayers.
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/6/2007 10:13 PM (GMT -6)   
Hey Judy,

Sending you some hot tea and hugs. I'll bump up a couple of posts I made recently re: the social security and help for cost of drugs.

I got a knot in my wrist and it was a ganglion cyst. The ortho doc injected it with cortizone and ruptured it on purpose. It hurt but I felt relieve almost immediately and went right back to work feeling better than I had in months. Do your lumps hurt??? Someone else may have other ideas . . . but make sure to show them to your docs.

In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Irratable Bowel, Inflammatory Arthritis
Clickable Links:   Healing Well:  Lupus Resources ~~ Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org  ~~  Criterea for Diagnosing Lupus (4 of 11):  Lupus Criterea  ~~   Lupus Foundation Chapter near you  Lupus Chapter Locator

Veteran Member

Date Joined Apr 2005
Total Posts : 1529
   Posted 9/7/2007 12:12 AM (GMT -6)   
So sorry to hear how aggressive lupus has become in your life. I hope you have an attorney to help you fight the disability fight. I hope the medications begin to make a difference in your condition. I'll be thinking of you with lots of positive thoughts!

xoxo emmie

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

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