Posted 9/6/2007 5:38 PM (GMT -6)
Hey y'all. I'm sorry I disappeared for a while. I have had an unbelievable flare for a couple of months. I have been place on cyclosporine since I 'failed' cellcept. I have been battling cerebritis, joint pain, fever, and active lupus nephritis. If the cyclosporine doesn't help my doc is going to do IV treatments of rituxan. I'm praying the cyclosporine works. I now take cyclosporine, plaquenil, imuran, prednisone, protonix, toprol xl, vasotec, lasix, lopid, zetia, procrit, Bactrim ds every mon, wed, fri (preventative), pacerone, procrit shots twice weekly, aspirin, Boniva, Zemplar, omacor, clonidine, and lexapro every day! This doesn't include prn drugs. I can't believe how aggressive this disease has become in my life. I am fighting with disability. My medical leave is about to run out and I will loose my insurance. There is no possible way I can afford theses meds without insurance, I am struggling with the insurance.
Sorry this is so long and whiney! Just a little overwhelmed. I have also developed knots on my wrist. Has anyone else experienced this?
Hope you all are doing okay. I covet your prayers. God Bless you