Posted 9/6/2007 7:35 PM (GMT -6)
Hi hippi,
know how you feel, been chained to the toilet. I'm sorry that you are sick and hope you feel better soon. It is so good to hear from you and I hope your son is better soon.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 9/6/2007 8:24 PM (GMT -6)
Hi Hippi! I am so sorry to hear that you are not well. I had some type of bug this week, also, and it does not help with the fatigue factor! I hope that the ped rhuemy can help your son - it sounds like you might have a great referral for him. Good luck! Is there a chance you can get some extra rest this weekend? I hope you get to feeling better real soon. We all really appreciate your nice posts - you really do make a difference! ((((HUGS)))))
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 

Posted 9/6/2007 10:07 PM (GMT -6)
Hi Hippi,

REST REST REST !! Oh, I feel so bad for you. Dealing with this dd is bad enough, but watching your son deal with it is too much and then getting sick on top of it??? Oy Vey!!!

BTW: In December when I got a horrible case of vomiting and D (three days of it!), I actually went into some kind of remission. It lasted over six months . . . I know its a huge long-shot . . . but I'm wishing the same on you!!!

Its been a real slap in the face to spiral downward again . . . but I sure do appreciate having had a respite from the recliner.

Hugs and Blessings to you Hippi!! and some hot tea coming your way!!
In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Irratable Bowel, Inflammatory Arthritis
Clickable Links:   Healing Well:  Lupus Resources ~~ Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org  ~~  Criterea for Diagnosing Lupus (4 of 11):  Lupus Criterea  ~~   Lupus Foundation Chapter near you  Lupus Chapter Locator

Posted 9/6/2007 10:46 PM (GMT -6)
Hippi,

I was so hoping you were getting better! And now you and Josh are both feeling worse. Rosie's right - dealing with lupus is more than you should have to be dealing with, but now this bug plus Josh's health is just too much. I'm glad you're taking care of yourself and that you don't feel like you have to post here till you feel better. It's important to take care of yourself before you feel like you have to take care of all of us.

I hope you and Josh feel better real soon.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Posted 9/7/2007 12:35 AM (GMT -6)
Take it easy, Hippi. The start of the school year is always so hectic...shopping for the supplies, new clothes, the kids' excitement. Then the year starts...making sure all the new forms are signed, any $$ for stuff sent in, any meetings attended, any open Houses attended, etc. On top of that to get a "bug" and Josh to be hurting= YUCK!

Feel better!!!

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

Posted 9/7/2007 1:23 AM (GMT -6)
TAKE CARE OF YOURSELF FIRST!!!! we all know how sick any one of us can get if we don't. Since I feel like puking now I will have to keep this short. I am really hoping this isn't a virus- I would rather it be good news.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

Posted 9/7/2007 6:23 PM (GMT -6)
Take care, Hippi. Your warm posts are missed. I hope you and your son get to feeling better real soon. Rest as much as you can.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

Posted 9/7/2007 7:13 PM (GMT -6)
Hi Hippi:

Oh honey I'm sorry to hear that you're not doing well. Sorry to hear Josh is having troubles too. Don't worry about the forum it will take care of itself, you just worry about taking care of yourself and resting. I hope that you and Josh start to feel better real quick.

Lots of gentle ((((((hugs)))))) for you. Hang in there sweetie.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Posted 9/8/2007 11:28 AM (GMT -6)
Thnak you so much everyone. It's so nice to come here and get so much support and understanding. I'm starting to feel better although I'm still having to watch what I eat. I was up in the middle of the night a few times last night - I just never know when it's going to hit. I've been taking some hydrocodone which has been helping and I'm not going to do much of anything this weekend. Both of my kids' schedules are pretty busy for the next few weeks, but once we get to October it will slow down a bit. So, if I'm not on quite as much as usual in the next few eeks, it's just because we are busy and I am needing extra rest.

I think Josh is doing a little better too - his bronchitis/pneumonia seems to be clearing up. I'll be glad to take him to this pediatric rheumy.

Well, I need to get going because I'm going to need to take another trip to the bathroom. Marji, I loved your description of being chained to the toilet - that's just how it is.

Thanks again for all the support.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 9/8/2007 11:57 AM (GMT -6)
Hi Hippi, sorry your feeling so rotten.
Sickness and diarrhoea is really the pits! It does exactly what you said, drains your energy, and us lupies have little of it to start with! I really hope you start to feel better soon, by the sounds of it your son sounds pretty sick too. I'll be thinking of you both and wishing you well. Rest as much as you possibly can and try to take it very easy all weekend. Hope you are able to post again very soon. Love to you x x
Chillblain Pattern LE, possible SLE, tachycardia, proctal fugax, anismus, slow transit constipation.
 
Prednisoloe, 35mg
Tramadol
diclofenick

Posted 9/9/2007 10:05 PM (GMT -6)

Hi hippi--

If you are having trouble digesting food, I found this out because I'm having it and thought it was a gi infection or flu for a long time but my doc says that sometimes with sjogrens and I suspect lupus that the pancreas doesn't work well at producing enzymes to digest food so you get diarrhea and he said at the healthfood store there is over the counter pancrease, a pancreatic enzyme supplement to help with food digestion.  Also, I recently got a script for dicyclomine (bentyl) for ibs spasms and I forgot how well that really works for pain and the diarrhea attacks.  then I take diarrhea med too and maalox for the stomach and acid.  An old work friend who was retiring said at his age he didn't really care that much about money, he just wish he could take a normal crap.  I thought it was so funny, but now I'm getting payback.  "Go ahead and laugh," he say.  "Just wait, you'll be old someday."  He was a great guy.  Oh, and the hydrocodone works good because it constipates you and takes away the pain.  I hope that you can get a good mix of stuff so you can get through this and still live your life.  (((hugs))) from a fellow sufferer and also my mom had a horrible flu like bug like this we are having and she said nothing took it away but prednisone and she had some asthma type lung involvement with it and I believe a bit of a rash.  It was a weird problem.  Also, be careful about the Hormel chili recalls.  Let me know if you need info, because its not just in hormel chili but other stuff.  Remember to drink your gatorade or something and to rest.  I will be praying you feel better soon.


Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 9/10/2007 8:19 AM (GMT -6)
I'm also starting to wonder if my stomach problems go beyond a flu bug becuase it just seems like it's an ongoing thing. I never thought about it being a digestion problem, but that's something I'll need to look into if it doesn't clear up. I've wondered about IBS too. I'm still so tired and am trying to get rested up.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 9/10/2007 8:46 AM (GMT -6)
Hippi,

I just hate to hear that you're feeling so bad. Something is definitely going on with you and I hope you can spend the day in bed and get the rest you need. Although it's hard to be in bed with the kind of tummy problem you're having. Is it time to call your rheumy? I hope your headaches are better and that your brain fog lifts as well. You've been hit with a lot of different problems all at once and I pray that this isn't the beginning of a bigger flare.

You've really been on my mind lately and I just want you to feel better for once. If you do call your rheumy I'll be anxious to know what he has to say. Take care and get all the rest you need. Sometimes it seems like I'll never get better unless I rest.

Sometimes a cup of hot tea can be soothing. Bless your heart, Hippi, I just want you to feel better. Take care of yourself.

Love and ((((((Hugs))))))

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Posted 9/10/2007 12:35 PM (GMT -6)
It may be time to call in a GI specialist. Stomach bugs usually work themselves out within a week. Longer than that usually means trouble- unless you had your gallbladder out and eat a high fat diet which would make it normal. I guess it is also to be expected in gastric bypass patients too. When I had my gb out I learned really fast to limit fat intake as much as possible. Here's hoping you either get better or find an answer ASAP.

<FONT color=blue><SPAN style="FONT-SIZE: 12pt; FONT-FAMILY: 'Times New Roman'; mso-fareast-font-family: SimSun; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA">
<SPAN style="FONT-SIZE: 10pt; COLOR: blue; FONT-FAMILY: Verdana">Tx: plaquenil, Enbrel, Celebrex, <?xml:namespace prefix = st1 ns = "urn:schemas-microsoft-com:office:smarttags" /><st1:City><st1:place><SPAN style="FONT-SIZE: 10pt; COLOR: blue; FONT-FAMILY: Verdana">Darvocet</st1:place></st1:City><SPAN style="FONT-SIZE: 10pt; COLOR: blue; FONT-FAMILY: Verdana">, Singulair, Flexeril, Baby Asprin, (soon to be d/c-Relpax,)Prednisone<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" /><o:p></o:p>

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