Tammy - Sorry to hear you are flaring. I haven't been here for a couple of days and just read earlier posts. Mine started off originally with symptoms of meningitis with swollen glands, then it went to flu symptoms with arthralgia, now it has changed again this year with bone pain added and last time with a light red rash throughout the body. I always turn "white" like a sheet and a week after the flare I get inflammation of an organ, pneumonia, etc. (whatever area it decides to hit at that time). It seems like everytime the disease progressed the flares changed.
Typically, I don't believe lupus progresses. Some people have it mild, some moderate, some severe. No one seems to know which course the disease will take. It is hard to remember that although one person has it severe, you may or may not ever have the same severity or the same problems. The common theme is that it hits more than several areas but which ones we may not know until after it has taken place. This is a lot of what ifs to deal with. Best thing I can do is to just deal with each day and each problem one at a time, while keeping in the back of my mind that I have a connective tissue disease and to be alert
to new symptoms. Hard enough just dealing with what is on my plate than adding to it. Not to say you do this, but I did and I think it is common to do so. Even now, I still have a tendency to worry about
tomorrow. I wish there was a rule book and/or a list of how things will go for the next ?? years, but unfortunately there isn't a book or list. All we ever have is today.
Learn your routine when you flare. I finally just figured out what a flare is and what I do each time. Finally, clicked in my head after going through this for 20 years (the last 10 years was more severe). I also just found out that I have also been going through this since high school but it was very mild for a long time until after I had my first child and all these crazy things started happening to my body.
It is nice to meet you and I hope despite your flare you get to enjoy today. Take care - Kristin
Dx: Lupus CNS 11/2005; Current - Mitral valve sclerosis, MVP/regurg, dementia; GERD; vision loss, narcolepsy, RA, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.