Posted 9/9/2007 9:21 PM (GMT -7)
my lupus took a turn for the worse a few months ago and i almost died and i had to have a medport put in and my left thumb amputated(vasculitis anjd raynauds') in august of 07 sooo im supposed to have heparin flushes every 2 weeks the only problem is i cant find anyone to do them...can i go to the hospital to have this done with a prescription?? anyone know..
all of my labs are looking up and im down to 30 mg or prednisone and came down on imuran too... i was supposed to start cellcelpt soon but it looks like i can wait on that since my labs are returning normal again...
anyone also have mitral valve and tricuspid valve regurgitation?? any worries from this..
DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage II Lupus Nephritis. 9 tia's and one pontine stroke('06)Seizures('06)steroid induced diabetes and pancreatitis, Photosensitivity since childhood, vasculitis, gangrene left thumb had amputated aug of 07,had mediport put in aug '07
Meds: Lisinopril,Hydrochlorithiazide,Keppra, Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet,Lidocaine cream, Xopenex inhaler, Xopenex Nebulizer, prevacid