stopping in, update, miss everyone!!!

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Veteran Member

Date Joined Aug 2005
Total Posts : 590
   Posted 9/10/2007 3:25 AM (GMT -6)   
How are you all? I know I have not been posting here much but I do read the forums once a day. Things sound crazy with you all and I am sorry for those having a rough time. I am happy for those who are doing well. My life has been crazy as I feel all I do is run a flare, work part-time, deal with stress, or feel sick. I have not been going out much and I am so tired. eyes

Lets see, I cannot believe it is already fall and I cannot wait for the new shows to be on tv. I love to sit and relax and watch it in the evenings, as I know I will rest. I am sick of hiding from the sun and excited about daylight savings changing back, although the new time for the end of October has me down. It seems like it just wipes us all out and its hard to hear all going through tough times with it.

Tonight, I think I finally had enough of a bad vibe in my life as I have decided I am not going to pursue this friendship anymore. It has been one for two years and they showed their true colors tonight. It is always about them, and their illness, acid reflux and how they are always sick. (gall bladder surgery 1 1/2 years ago) I have a flare and all the sudden they communicate with me they are sick of their illness. Rofl at this point because they know what I deal with. Ok, well, after you are mean to me, I cover your but at work and deal with your drama and your partner may leave you, I only have so much sympathy. Sorry to vent but I cannot stress enough how much this person has brought on themselves.

I cannot stand how when someone is rude and we think it is us. Boy what an awakening this was. My hubby worked with this person and said how much others do not like this person, now I know and will not be shall I say dealing with them any more. I do work with them but I will keep to myself as they were rude on Saturday and today.

Well sorry to vent, I guess I forgot that there are others out there who would love the attention we get sometimes due to our illness when we would give a day to be normal.

Take care,
sle 99 w/cns/autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency 4/07. Meds are baclofen 40 mg, prenatal tabs, potassium, calcitriol 50 mcg, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, percocet, sjogren's stuff

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/10/2007 3:59 AM (GMT -6)   
Hi Leta,

Nice to hear from you . . . sorry you've been feeling crumby. . . *sigh*.

Sounds like an uncomfortable relationship. I think some people look at us and want the attention that they "think" we are getting. They don't understand that we would love to move along, unnoticed and able to do everything independently . . . but somehow they see illness as "romantic". Anyway, her acid reflux could be very hard to manage too. . . I'm SURE she has absolutely no idea how awefull you feel so much of the time. Still . . . you need to spend your emotional energy wisely and its good that you have decided how to handle this. I hope things go better for you.

In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Irratable Bowel, Inflammatory Arthritis
Clickable Links:   Healing Well:  Lupus Resources ~~ Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org  ~~  Criterea for Diagnosing Lupus (4 of 11):  Lupus Criterea  ~~   Lupus Foundation Chapter near you  Lupus Chapter Locator

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 9/10/2007 8:59 AM (GMT -6)   
Hi Leta,

It's great to hear from you, but I'm sorry you aren't doing well. I agree with Rosie about relationships with people that are always wanting all the attention and don't take the time to understand what we're going through. I'll bet you find that making the choice to end an unhealthy relationship and move on can be very empowering. After all, you certainly have a choice as to who to spend time with and feeling bad, as you do, you have enough problems without adding a negative person to the equation.

I hope the fall weather helps you feel better and am glad you can rest in the evenings. Sounds like your hubby is supportive of you. I'm glad you look at the forum every day even if you don't feel up to posting.

Thanks for letting us know how you're doing. Hang in there.


Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 9/11/2007 10:15 AM (GMT -6)   
Hi Leta--
Missed you. Sorry to hear that you have been having flares and about the negative person that latched on to you. I agree with Rosie and Patty. You are such a nice person, you don't need that. Some people are misunderstood, especially when they are sick, but some people are just well, too self-involved to know you are in the room.

Hope your porphyria and other stuff is under control. I can't wait for the cooler temps of fall, even though my yard will look like a dead place. I've started breeding fish again and they are so soothing. My bf is helping me.

I tried to get tested for porphyria and showed them where my hairline is growing into my eyebrows but they think its from the prednisone and that porphyria is so rare that there is no chance I could have it. Even the hepatologist. They keep telling me its the plaquenil. So it's going to be a while. Right now, I'm willing to let it slide till they get some other stuff under control.

Well, I think of you alot and hope you are doing well. Its so good to hear from you. When you get time and feel better, I hope that you will post more!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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