a question about inflammation

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Regular Member

Date Joined Mar 2007
Total Posts : 153
   Posted 9/11/2007 11:59 AM (GMT -6)   
The last time that I had fevers, aches etc. I went to my rheumy, who did blood work. Everything, including my ANA and inflammation markers, came back normal.

I had been having fevers for about 2 weeks prior to her doing the blood work. Then, the day after the blood work I didnt have a fever and was good for a while.

I am confused and concerned. I would have expected the sed rate or inflammation markers to come back high. I was feeling MISERABLE. Second, my ANA coming back normal???

Do any of you know what this might mean?

Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 9/11/2007 12:18 PM (GMT -6)   
Darlene, my rheumy doesn't even test my ANA anymore. She says that once I have a high result and a diagnosis, there's no need to keep testing for it. We all can attest to the fact that our ANA count fluctuates. There have been times when I've felt especially bad but my labs haven't shown anything unusual. Other times the labs are high. I've reached the point where I don't worry myself with numbers but rather try to focus on doing what I have to do to feel better.

I had lupus symptoms for years before my ANA was positive and I'm not sure what that means. Maybe someone else who's brain isn't as loopy as mine is today will be able to give you a better answer. I'm in one of those moods where it's too hard to reach in and turn on the brain. But I understand what you're feeling!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/11/2007 4:19 PM (GMT -6)   
Darlene, my rheumy told me the same thing that Pat's rheumy told her. I was told that once you have a positive ANA, you have a positive ANA and there isn't a lot of need to continue to test it. I have also read that ANA's can fluctuate a lot. I've also read that sometimes when people are on prednisone, their ANA can sometimes return to normal, but I don't know for sure if that's true or not. I agree that labs can be so confusing. There are times I am miserable and my labs look pretty normal and other times I'm miserable and my labs are off. I almost always have elevated inflammation levels though.

I hope your doctor treats your symptoms instead of your labs. If you are miserable, then you are miserable and the doc needs to treat the symptoms. How are you doing with the c-diff? You have been in my thoughts and prayers and I'm praying you get some relief.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 9/11/2007 9:37 PM (GMT -6)   
How you feel trumps all cards.
Lupus and other AI diseases present such a variety of symptoms and test results but the bottom line is how you feel.  Keep a detailed dairy of your health and present a summary to your doctor.  If he/she is not experienced with lupus...get another doctor.  It is difficult for an experienced doc to diagnose and treat and almost impossible for an inexperienced one.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

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