Lupus attacks your organs?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Mar 2006
Total Posts : 124
   Posted 9/13/2007 11:41 AM (GMT -6)   
I am newly diagnosed and I don't understand what it means when lupus attacks your organs? Can someone explain this to me? I have been having alot of problems with my lungs and have just been blaming it on the dust storms we have here and poor air quality.
Take Care,
"Grace by which I stand."
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus

Regular Member

Date Joined Oct 2003
Total Posts : 262
   Posted 9/13/2007 12:39 PM (GMT -6)   
hi renee,
i'm suzanne, with me the lupus attacked/attacks my kidneys. basically, it goes into my kidney and does damage to the tissue so that the kidneys dont function correctly. that was actually how they were able to diagnose me quickly, sometimes it takes years for a person to get diagnosed with lupus even though they have the symptoms. the lupus had attacked my kidneys so bad that last year i had a kidney transplant and this year the lupus actually attacked the new kidney too. hope this helped a little in answering your question, but dont worry i'm sure someone else will be able to explain it even better than me.
Hugs and prayers,            God grant me the serenity to accept the
   ~Suzanne~                 things I cannot change, the courage to    
                                    change the things I can, and the wisdom
                                    to know the difference.
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN of R ankle '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 9/13/2007 9:18 PM (GMT -6)   
Lupus can attack almost any internal organ.  In my case it got my kidneys, joints, and my entire GI tract.
The immune system can "attack" almost any part of your body.  Lungs, heart, blood, kidneys, nervous system and more.  Do a google search and you will find out lots of information about it.  Some lupers have terrible problems and others have none.  Just don't ignore any new symptoms even if you don't think they have anything to do with lupus.  They just might.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

Regular Member

Date Joined Jul 2007
Total Posts : 261
   Posted 9/13/2007 10:54 PM (GMT -6)   
Hi, Renee. My lungs are involved with my lupus. A pulmonologist was the doc that actually helped me get the lupus diagnosis. He is like the #1 doc in the world to me! He is the only one that listened to me through all of that. I had pleural effusion in the pleural membrane surrounding my left lung. It actually filled 3/4's of the way up and had partially collapsed my lung before they found it. I had a really bad fall where I landed just below my left rib cage and that's the trauma that set it off filling up really fast. (I also had a fractured rib that probably contributed to some pain.) I know I was having some lung involvement before the fall actually happened though. I just have no proof because I had a really stupid PCP at the time who would not listen to me and do a simple chest x-ray. You didn't go into any detail about why you're thinking you might have lung involvement. The first things I noticed (well before my fall) were pains in my left lower abdomen, as well as what felt like a "kitty purring" feeling in my lung. (Kinda like when you're just starting to get sick with a bad cold.) The more and more it filled up these pains became excruciating, not only in my abdomen but also stabbing pains in my back directly behind where I was hurting in the front. I could not lay on either side in the bed without being stabbed. I eventually could not lay flat at all. I would try to prop myself up on like 4 to 6 pillows and sleep. Not at all comfortable. I really got no rest during this time. Then when I would stand up so much pain would come rushing back that I would nearly fall. I couldn't cough, sneeze, or even yawn without pain. Even after they drained the effusion from my lung, I got bad pleurisy pains in the right lung making me think it was starting all over again in the other lung. That's when they started me on prednisone. Even now a year and a half after the pleural effusion, as I taper the prednisone I can still feel a "tight grab" in the lower part of my left lung if I breath too deep. I can show you exactly where the bottom of my left lung is without an x-ray or anything. You're not supposed to know your body that well! Let me tell you, this was the most painful and scariest time of my life! I was also having "heart attack" feeling type pains in my chest at this time. Even after having gone to an ER, they just said everything tested normal! My PCP wouldn't listen. ER's couldn't find anything. I really thought I was going to die feeling the way I was and nobody even know why! I don't want to scare you, but I would definitely discuss any lung problems with my rheumy and have that looked at. I think I will forever have problems with mine because it was ignored and stayed filled for so long. Hope this answers some of your ?'s. Go over anything you're feeling if you reply. I'm just trying to remember these things off the top of my head. I might have forgot some stuff. Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

Regular Member

Date Joined Jul 2005
Total Posts : 183
   Posted 9/17/2007 6:26 PM (GMT -6)   
I was having chronic kidney problems adn that is how I was diagnosed. Since then it has affected my lungs, heart and GI tract. My joints are also a real pain for me because I also have RA. By looking at me you would never know how this is all affectingme - but boy oh boy my insides tell a different story. Overall I live a very full life - I have had to learn to make adjustments overtime. Hang in there - Like Bill said - some of us have a lot of problems and others of us seem to have none - but DO ALWAYS pay atention to your body.
Live Well, Love Much, Laugh Often & Be Happy...
~Never Underestimate the Power of Influence~
 MVP, Chronic Bladder & Kidney infections(including stones) since 1983, Hypothyroid since 1997
SLE & RA since 2002
 Meds: Armour Thyroid, Arava, Plaquenil, Celebrex, Humira, Nasocort, Astelin, Allerx, Detrol LA 

Regular Member

Date Joined Mar 2006
Total Posts : 124
   Posted 9/17/2007 7:16 PM (GMT -6)   
Thank you so much for you replies. It is hard to make people understand how we feel when we look fine on the outside. My husband doesn't understand or know how to deal with my health problems. It is good to hear from others going through the same things.
Take Care,
"Grace by which I stand."
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, August 19, 2018 9:59 PM (GMT -6)
There are a total of 2,994,563 posts in 328,145 threads.
View Active Threads

Who's Online
This forum has 161285 registered members. Please welcome our newest member, LibertyCalls.
300 Guest(s), 7 Registered Member(s) are currently online.  Details
clo2014, Goldensundrop, auzzie, Dogdays, BillyBob@388, Pratoman, Saipan Paradise