I don't know what meds you take and what other problems you have disease wise, but what you are going through sounds much like what happened to me. I actually just started checking into the mental place because they had a doc there that would test me for some things and psych med was better than nothing. I'm not suggesting that to anyone, but I was driven to madness by pain and was afraid for myself if I didn't get tx.
Please don't get discouraged. I think the problem is that they are not running the right tests for you. My temperature is constantly low sometimes as low as 95 in the morning and has even been 96.5 or less during the day, and it feels like a bad fever and is not supposed to be good for you. As you become an adult, going down one degree is considered normal. The best measurement is taking your temp when you rise before you move, put the thermometer by the bed. That's the temp you need.
Next, you need to find a doc that might not be world class, famous or anything, but is humble and will listen to you and perform the tests you might suggest, since you know your body better than anyone. My thyroid is consistently within what most family docs and ERs call normal, but I've lost have my pigment and have other dramatic physical changes due to hypothyroidism, including nerve problems. They must measure your anti-thyroid antibodies in addition to your thyroid levels--these are called TPOs and Tgs and many many many people with hashimotos are euthyroid (normal TSH levels) but have TPOs in the hundreds, even thousands. There is another disease called hashimotos encephalopathy that others know more about
but your thyroid can be normal but it presents like bipolar disorder,can cause seizures and all sorts of things and it is when your TPOs are very high--some people they are 10,000 (high normal is 60). I strongly urge you to get tested for this.
Also, if you have any skin issues, go to a dermatologist. They will often run more bloodwork and take you more seriously than anyone else. They have to rule out systemic disesaes before treating your skin, if you have a skin condition.
Also, if you are overweight, there is a condition called fatty liver which runs with ai disease, especially sjogrens, and it is a form of prediabetes. If you have people in your family with diabetes and you are or were overweight, this is something to check out. This can be done with an abdominal ulltrasound (like baby ultrasound) if your liver levels are out of whack, and definitely if you are overweight getting a blood insulin test is good, then a glucose tolerance test if it is abnormal.
When you have some of the other stuff dx, if you have them, then it's easier for them to believe that you may have some type of ai disesae going on, even if the labs aren't showing it right now. I know it's round about
, but its like gathering circumstancial evidence when the smoking gun is missing.
I hope this helps and don't get discouraged. If you know in your heart that you have a problem, don't give up and don't just let them label you crazy. It doesn't mean you have to react to it. Just keep plodding away. A good psychiatrist can definitely order the thyroid bloodwork and should, since many people with high TPOs cannot take medicines like lithium, it nearly killed me. And checking blood insulin--make sure they test that and not just blood sugar or other diabetes tests they claim are better, they must check blood insulin, a very cheap test, can tell you if you are insulin resistant, which might cause AI disease or at least is very common for people that have it to also develop AI disease if the liver is involved.
Sorry so long. please take care and know that people here care about
you and are rooting for you. If you have to, do what I do and say, "I'll stop bugging you if you just run these few tests...."
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments