thanks hippiemom

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New Member

Date Joined Sep 2007
Total Posts : 3
   Posted 9/16/2007 12:29 PM (GMT -6)   
 Your words were encouraging. I appreciate your response. I'm feeling better mentally today but not physically. There has to be something that causes Lupus and I'm not going to stop til I find the source and a cure. Sounds idealist, I know, but I believe .. . I will keep you posted

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted Yesterday 9:11 AM (GMT -6)   
editor, it can be so hard to keep you spirits up when this disease turns your life upside down, so I'm glad to hear that yesterday was a better day for you emotionally. I think your passion to find out all you can about lupus and to help look for a cure could be a very positive outlet. It can help give you a sense of purpose and meaning when you need it the most.

Everyone at this forum is here for you through all of the twists and turns and obstacles this disease throws at you.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted Yesterday 7:42 PM (GMT -6)   
Hi editor--
I do know that there is exciting research going on in cytokine and anti-cytokine therapies. I had AI disease and was mistakenly given alpha nterferon, a powerful immune boosting cytokine. There is alpha, beta and gamma interferons. If a person is given too much alpha interferon, they will develop systemic lupus and develop anti-ds-dna, this is pretty well documented. There is also something called anti-interferon alpha, which is an antibody to interferon, it can cause other different problems, but I think that these cytokine therapies are where its at and will be the key to effective treatment and control of lupus. Here's a link to an interesting article that seems off topic, (about the side effects of cytokine and anticytokine therapies) but in reading it you will realize what happens when people have high amounts of these naturally occuring substances in their bodies. It used to be at:

But I cant get there
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

New Member

Date Joined Sep 2007
Total Posts : 3
   Posted Today 8:01 AM (GMT -6)   

Dear cure4real, thank you for the good info. I will check out the website and let you know what I find. Thanks for your support and hippimom too. I just spent the past 3 days mostly in bed cuz it hurts too much to walk. Feeling better today.


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