I am sorry it has taken me so long to get back on here.
I only take the Rozerem as needed - it helps me sleep. WEhich is something I don't normally do for more than a couple of hours at a time on a good night.
I begin the Orencia on the 26th. I am anxious to try it as since I last posted the pain has become increasingly worse.
As for my diagnosis - back in 2002 my original treatment was for SLE - but since then I am mainly being treated for RA - I have all the classic signs of SLE and she treats me for it as well - but says for insurance purposes (Life Ins., etc) it is best that we treat it but not offically label as SLE. My ANA has been (what I would consider to be) off the charts over the last five years 1:1260 & 1:1640. I am not 100% of the numbers now - but I know it was in the 1200 & 1600 range and for some reason 1260 & 1640 come to mind. Some of my early paperwork from my DR lists SLE & RA - and she gave me brochure on SLE as well info on a Lupus Support group in my area. I take that as pretty much the most official unofficial dx of SLE. I hope this helps you somewhat. At least you know you are not in this confusing dx boat alone. I would sometimes wonder if the SLE stuff is just all in my head and wonder if maybe I just have RA. Do you or have you ever felt like that too? So often I feel like a mess as well as a guinea pig - going from one med to another in hopes to find something to help.
I wish you the best and I sincerely thank you for your input.
God bless you Sweetie.
Live Well, Love Much, Laugh Often & Be Happy...
~Never Underestimate the Power of Influence~
MVP, Chronic Bladder & Kidney infections(including stones) since 1983, Hypothyroid since 1997
SLE & RA since 2002
Meds: Armour Thyroid, Arava, Plaquenil, Celebrex, Humira, Nasocort, Astelin, Allerx, Detrol LA