I wish I could distill it. All I know is that I was born with it but remaining persistent has been very difficult. As you might recall I was a quadriplegic from polymyositis just 20 months ago and now am completely independent and trying to regain my strength. I play many mind games with myself to keep myself moving forward but the journey is an uneven one. I must constantly remind myself of all those things I want to do again.
My story was just posted on www.marianjoy.org and can be found under patient stories. Maybe there is a kernal of help in it. Marianjoy is one of the best rehabilitation hospitals anywhere and that is where I spent 5 weeks in and 8 weeks out. Today I volunteer there.
Sometimes I just don't know where I get my determination. My wife claims I am just stubborn....and a good thing. It is probably my Scotch heritage....just kidding of course.
Do what you can...but just keep on doing it. But set some goals first....achievable ones...and ultimate ones that you hope to achieve. That way you can see success but also see where you want to go ultimately.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it." Helen Keller