Welcome to the board!
Sometimes when these types of diseases start out it takes a while for the bloodwork to come out positive. My ANA's, etc. did not show up for years, then a little, now a lot. Honestly, I think I have had this disease for about
20 years, the last 10 were tough. I just got diagnosed in 2005 and rediagnosed again this past month. My daughter has Lupus but her boodwork is negative still even though she meets criteria for Lupus. These are all odd diseases in the way they present themselves. There are primary and secondary diseases, overlaps, and it hard to tell exactly the type of disease. They are all about
the same in my book as they all hit various areas of the body and have similiar symptoms. I do not have Sjogren's but I have had dry eyes and mouth years ago for about
2 years. I also have had some symptoms of Scleroderma for 1 year. My primary diagnosis is CNS Lupus but it has now started in my organs. As you can see, there is no rhyme or reason to this. That alone makes you feel crazy. Along with having symptoms that not many people will ever experience. It took me a long time to realize I was not a hypochondriac and that my illnesses were real, progressing and had a pattern to them. It is like a puzzle and can be very painful and frustrating at times. This group has helped immensely. More than words can say.
I hope you are able to find a group (hopefully ours) that you can find the support you need. Don't worry if this group doesn't fit completely. I was in a Scleroderma and Cadasil group prior to finding out I had Lupus. They lead me to this one and I learned a lot about
my disease as well as theirs. The different ideas I learned helps me and others. It is a long journey. I wish you the best in finding out the cause of your symptoms - Kristin
Dx: Lupus CNS 11/2005; Current - Mitral valve sclerosis, MVP/regurg, dementia; GERD; vision loss, narcolepsy, RA, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.