Posted 9/20/2007 12:41 PM (GMT -7)
I remembered not to have all my pre-skin cancer spots removed at once (had 6 done on face, about 6 left on body), but I forgot they usually bump prednisone a little for even minor surgeries. Just figured that out about an hour ago -- will bump it a bit for Friday and I'm sure that will help me feel less *tired*. I'm kinda' enjoying having my own little vent topic...it's nice to have someplace to dump this stuff, even if you guys get tired and stop reading it! :) Lynnwood,   Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex Links: DIAGNOSING LUPUS(4of11) , LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 9/20/2007 2:59 PM (GMT -7)
Hi Lynnwood,

Sounds like you are doing a bit better. Hope the elves have arrived!

I started reading your post because I knew I could relate to the subject matter. Just got up from a half hour nap, fed the cats and the dog (fed my son earlier on McDonalds food) and now I am going back to do a "volunteer" problem session with calculus students. This after 3 - hour and twenty minute classes today. I want to weep with exhaustion.

Hope the homeowner stuff resolves itself and you can get some rest.

Stay Strong,
Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg), Imuran (2X50mg), Prilosec (20mg), WellbutrinXL (150mg)

Posted 9/20/2007 4:16 PM (GMT -7)
Hiya Lynn:

Sorry to hear that you're so tired. Yup sounds like your pred needs to be bumped up some. Even for very simple procedures we need that extra boost. I hope by tomorrow you're feeling much better. I know you quite well and for you to mention you're feeling poorly, you must be in really bad shape. Here's some much needed positive vibes and prayers your way. Know I'm here for you if you need me. I'm just a phone call away. You take care and get plenty of rest.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Posted 9/20/2007 11:43 PM (GMT -7)
I hope you get enough sleep and remember to up the pred for a lil while. Also feel better soon. I am tired myself, but for a happy reason. I will keep you in my thoughts and prayers.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone

Posted 9/21/2007 6:56 AM (GMT -7)
Lynnwood, sorry I got to this topic a little late. I really hope the bump in prednisone does the trick for you. Everyone is right that you rarely talk about how you are feeling, so when you say you are feeling bad, we know you have to be feeling pretty miserable. You are so right that it is nice to be able to come here when you feel rotten and know that people will really understand and be there for you. I think the support here is such a blessing, and you certainly deserve to be on the receiving end of it. I hope that once your deadlines are over you can really rest up and de-stress and do absolutely nothing. Take good care of yourself. Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums
Posted 9/21/2007 7:57 AM (GMT -7)
Hi Lynn, It's a good thing you remembered to bump up your prednisone a little. When you do that, how much do you take? I find that sometimes even taking an extra 1mg can help but I imagine that for a procedure you'd need more than that.

Are you feeling any better? I hope you've been able to make a dent in your homeowners' work and in getting the website recreated. Don't you wish that sometimes you didn't have anything at all to do for a few days? I crave times when my calendar is clear and I can take a big breath and relax.

Take care Lynn, and continue having fun with your little vent post. I'll bet you have more stuff to dump if you stop and think about it. :)

Hang in there.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Posted 9/21/2007 8:46 AM (GMT -7)
Yeah, I feel some better today. My usual pred dose is 10mg, I bumped to 12mg today. Will probably do that thru the weekend (3 days total), then go back to 10. I am having a bit of fun w/my own little vents, thank you all for playing! Last evening I went out to eat. I was supporting my neck w/my hand & arm as I was reading the menu. The waiter asked if my neck hurt. I said my whole body hurt. He suggested a cocktail!!! I've never been a drinker, but did decide to have a light beer despite my meds (only takes 1/2 to get me buzzed even w/out meds). It did help me relax in a different way than meds do. And the waiter got an extra tip. Lynnwood,   Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex Links: DIAGNOSING LUPUS(4of11) , LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 9/21/2007 8:50 AM (GMT -7)
LOL . . . glad you enjoyed your dinner last night Lynnwood . . . I hope today's event goes better than the last . . . it sure doesn't take much to through us into trouble. Let us know how things go today when you feel up to it. Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator
Posted 9/21/2007 9:25 AM (GMT -7)

Hi Lynwood,

I think the stress of ending a trusted relationship with your Rheumatologist, skin cancer removal and your projects are screaming for you to take it easy. I know the projects are extra things that you do, but you seem to be a person of excellence which means, if you are going to do it then it will be right. It will get done. You still have clarity and a great attitude.

The last few weeks have been terrible. My parents wanted for me to go with them on a very nice long vacation at no cost to me and I was unable to go. Can't imagine a trip down the road. I felt guilty and anxious, but thankfully my mom cancelled the trip and said we will go if and when she sees significant improvement.

Last night, I made a mistake with my seven day tray and took my AM meds in the very early morning hours. Prednisone, etc. Wide awake until 4:30 until I discovered the mistake. I just could not believe it! I have not left the house, almost quite literally for weeks. I try to excercise, but literally sit and keep thinking I will get moving soon. Just too exhausted. I did the hair thing, but at home, good hair day for no one to see! 

I have two places I need to have checked on my face for skin cancer, looking forward to the greasy face! :-)

You have also just jogged my mind that I need to file my taxes! Thank you. After reading everyones words to encourage you, I agree, get your doctors file, shower once or twice, and then take it easy.

I also was encouraged to see that everyones response had such a thread of similarity, that I don't feel like I am the only one with such unique struggles. I have the big seven day pill trays and can relate to what someone wrote about the last day being the worst becasue you have to start over. Chasing down prescriptions, reload for a few weeks. During that time I usually get irritated thinking about how many and how much money I have swallowed! "Medical PMS" It takes me about five or six hours to get it done!

My mom thinks the challenges of losing such a tremendous doctor and feeling medically orphaned until finding a new one is in part causing my flare. Just can't believe it. I saw my file and made the mistake of looking at it. I still can't believe after all of this time that I have SLE/Sjogrens. Does anyone else go through that?

You are very much appreciated on this forum, I am not on it much but it is evident! Take care of yourself. Yes, getting your hair done is a nice lift, I hope you like it! Above all else, we are still women.

GAGirl1

 

 

 

 

 

 

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