Warning & Reminder

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Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 9/20/2007 4:32 PM (GMT -6)   
I remembered something the hard way this week...

There are some kinds of very minor surgeries that we have where it is easy to forget that we need to take special care due to our funky immune systems. The easiest example is simply seeing the dentist...we also need to remember this when seeing the dermo!

For the more major surgeries, our drs & our surgeons remember to give us a little extra prednisone or other 'boost' when we have work done, but...

This week I had some pre-cancerous lesions removed. I remembered hearing the admonition about "don't have too much done at once", so had only 6 of my 12 frozen. I did NOT remember to take a little extra prednisone before and after. I wish I had.

I have been very tired since having this done Monday, which I didn't immediately realize was from the dermo treatment. I have also been having huge problems with the Sjogren's in my eyes. Today I finally thought of the prednisone --- the work I did have done was on my face -- my sinus's feel a little off, my eyes are red, itchy, dry & tired...and it took me all week to remember this!!!

All this could have been avoided had I remembered the proper pre & post "surgery" treatment!!!!

So thought I'd post this, as it's so very easy to forget.... eyes

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 9/21/2007 2:46 AM (GMT -6)   
Thanks for the reminder. I wonder if when I deliver the OB doc will remember to have my pred boosted for a while. That is still a long way off but a big deal. I will have to recall that between 12 and 17 weeks when my cervix gets stitched closed. That is one time when I am sure none of my docs will remember to boost the pred. I still have at least 6 weeks for that tho so I will have to struggle to remember.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/21/2007 8:42 AM (GMT -6)   
Thanks for the reminder because I think we remember to take precautions with major proceedures, but I probably wouldn't think about maybe taking some extra pred before dental work or "minor" proceedures. I saw on your other post that you aren't feeling well. Hopefully you can tweek your meds and get lots of rest.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/21/2007 11:14 AM (GMT -6)   
Great topic Lynnwood . . . thanks!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined May 2006
Total Posts : 236
   Posted 9/21/2007 11:22 AM (GMT -6)   
Thanks Lynnwood - I hope you feel better soon - HUGS - Kristin
  Dx:  Lupus CNS 11/2005; Current - Mitral valve sclerosis, MVP/regurg, dementia; GERD; vision loss, narcolepsy, RA, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  

Veteran Member

Date Joined Sep 2005
Total Posts : 1744
   Posted 9/21/2007 12:34 PM (GMT -6)   

Maybe that's why I felt so awful after I had my tubes tied last fall.  After coming out of the anesthetic my joints were so stiff and so sore I wanted to scream.  I'm not taking prednisone, nor was I then (I take enbrel and/or mtx for rheumatoid arthritis), but I truly wish I had had something like prednisone then.  The doctors gave me pain killers (for the surgery, obviously), but they barely did a whole lot for the joint issues.  It took weeks for me to get back to normal.  I think I'll remember this the next time I have to "under" for something.  I hope you feel better soon.



Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/21/2007 9:42 PM (GMT -6)   
Hi Elcamino . . . . If you don't take pred you can consider extra anti-inflams . . . the problem is that you need to make sure it is ok with the docs because most of them can cause internal bleeding and are contradicted for surgery. But, if I normally take rx strength ibuprofen 3x/day, I will fit in a fourth dose on hectic days and it really does help. It will also help kick a small flare.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 9/23/2007 1:20 PM (GMT -6)   
Thanks for this warning as I need to go to the Dermy soon to have a rash on my legs and some questionable moles checked out.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 9/23/2007 2:19 PM (GMT -6)   
Lynnwood, thanks for the information! I never cease to be amazed at what I continue to learn from you friends at HW. As Rosie said, great topic.


Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 9/25/2007 4:13 PM (GMT -6)   
Thanks for the info Lynnwood, You probably saved me from a hospital trip when I get back to oklahoma tomorrow.
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

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