Hi Carrie . . . welcome to the forum!!
Plaquenil takes almost 6 months to get to its peak performance in your body. Even at that most everyone here who takes it for pain and stiffness also takes an anti-inflammatory med as well. I have tried many anti-inflams and my favorite was Viox
. . . but I didn't have success with the other rx anti-inflams. Each of us will find a different one that works best for our body . . . mine is rx strength ibuprofen. I take 600 mg 3-4 times a day. My doc puts me in charge of my dosing . . . so when I'm feeling really well, I only take it 2x/day. When I'm flaring I take it 4x/day. At one point even that wasn't enough and my doc had to add Methatrexate (MTX) to my rx list. That actually began to help the fatigue. OH . . . I see that you do take Celebrex which would be your additional anti-inflam. I wonder if you doc would consider allowing you to try a couple others . . . its amazing how differently they each work with our wacky lupan systems. Also make sure that your blood pressure med isn't too strong. When my bp is consistently low, I feel very weak too.
Your second question was about
weakness and loss of strength. I try REALLY hard to describe this accurately to the doc. My definition for fatigue is . . . everything I do is like walking under water . . . everything I do takes SO much effort. Then there is weakness . . . like, I'm not strong enough to lift this bowl to the upper shelf of the cupboard or I can't carry a basket of laundry down the steps. With fatigue, I can lift the bowl or carry the laundry, but then I need to rest.
Muscle weakness needs to be looked into because there are overlapping conditions like Myositis that should be treated if present. The fatigue IS part of Lupus.
Last, but not least, we really need to pace ourselves. When we push past a certain point (in terms of using our physical and emotional energy) we push ourselves right into a flare. Most of us here are go-getters and we each had to find a way to pace the energy we have on any given day so that we don't reach the point of exhaustion. You also need adequate and deep sleep to heal your body.
I hope the others have some good input for you as well.
Again . . . welcome to the forum sis!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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