Well, I'm getting used to living like a troll. I don't even miss going outside anymore, like I used to, have no desire to hurt my eyes looking out the window. I feel like I eat a steady diet of crushed glass, and of course, so far, nothing is wrong except for some "inflammation" of unknown cause, probably my ai disease or food allergy. The pain meds and dicyclomine don't work anymore, and a trip the bathroom strikes fear into me. Not eating most of the time has worked in the past, though now I'm working up to stomach heartburn and stuff, probably from worrying and not eating, so I eat a little, which I later regret. Today, I felt so bad I went from the bed to the chair and stayed there all day and then went back to bed. Posting here is the most I've done all day, and I hate the wasted time. I know some of you all are going through this too and its just plain rotten. I hope they figure out what is wrong and don't just tell me nothing is wrong, because I know this is definitely not normal and not something I plan to live through my life with. I can deal with the sun sensitivity, but this other stuff is just the pits. I've been doing the teas, mint and ginger, and antinausea meds. They help enough that I can eat, but then it hurts later so I wish I didn't. Well, maybe I should call the rheumie and get back on pred again, since it helped so so much. What do you think? I have an endo appt coming up and I'm trying to straighten out enough that if she runs tests they will be accurate. I'm confused. I hope you are all doing ok. I'm looking forward to fall and winter so much. It will be summer for me! Cool temps and a fire in the fireplace!
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments