Children with Lupus

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New Member

Date Joined Oct 2007
Total Posts : 1
   Posted 10/1/2007 9:47 AM (GMT -6)   
Hi...I am a concerned Aunt of a 5 year old niece that was just diagnosed with Lupus.  The kind that affects your organs.  The initial symtom was her kidneys started to shut down.  Has anyone out there known of anyone this young that has Lupus.  Thank you for any responses!

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 10/1/2007 1:14 PM (GMT -6)   
Hi blessed and welcome. I am so very sorry to hear about your neice - what an absolutely terrible thing for such a young child to go through. I really hope docs caught it soon enough to be able to reverse some of her kidney problems. I don't know about young children, but I know that members here with kidney problems have done very well with treatment and a lot of damage was reversed. We have also had members who have had successful kidney transplants when their kidneys have failed.

Like I said, the good news is that lupus can be very treatable, but it is a serious disease, especially when it attacks organs, but there are many treatments available when organs are affected. Is your neice seeing a nephrologist for her kidneys? My other thought is to try to make sure your neice sees a pediatric rhuematologist since they are specifically trained to treat children with lupus. Regular rheumatologists don't have the specific training in how these diseases affect children. There aren't a lot of pediatric rheumatologists, so your neice may have to travel to see one.

My 10 year old son has autoimmune issues and the docs aren't sure if it's a lupus type thing or more of a juvenile rhuematoid arthritis. We are seeing a pediatric rheumatologist later this month. It's so hard to watch a child suffer and go through these kinds of things. Please let me know if you have any questions or if you just want someone to talk to. It's been very hard watching my son be in so much pain and to feel helpless, so I can relate some to what you are going through. Your neices parents are welcome to come here too and ask any questions.

Take care. Your neice and her family are in my thoughts and prayers.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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New Member

Date Joined Jul 2015
Total Posts : 1
   Posted 7/20/2015 12:49 PM (GMT -6)   
I see that this post was back in 2007, but my daughter, who is 5, was just diagnosed with lupus. Hers started with the malar rash across her face, after being in the sun without sunscreen. Then she started having fatigue and joint pain. I had no idea it was lupus, just thought it was related to a virus we had all had a couple weeks prior. Her kidneys have been affected, they are inflammed, but luckily maintained normal functioning because the peditritian caught it early. She has been on steriods for 8 weeks now, along with a long term medicine used to treat lupus. Unfortuneately, there are the side effects to the meds and she is now on meds for high blood pressure. I would love to talk to another parent or relative who has this similar situation, but know that there are very few 5 year olds with this condition.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 7/20/2015 8:48 PM (GMT -6)   
Welcome, kridder.
Sorry to hear about someone so young dealing with this rotten disease. I hope she gets feeling better soon.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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