Mild case of Lupus

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tink 2
Regular Member

Date Joined Jan 2007
Total Posts : 371
   Posted 10/2/2007 2:20 PM (GMT -6)   
Ok here it is I went to a rhumy finally and he said that I may have a mild case of Lupus and also may have Fibro. Yes, Finally. This after the crazy Derma said I was not sick. I had more blood test and had to battle the rain and stuff and now I am glad I am home. I am ok I knew that I had Lupus and was ready for Fibro. I am getting worried because They are having a hard time getting blood anymore. She had to almost push it out of me. Oh well this is what happens when they take blood every other week and try to get as much as they can. The tap is running dry. Oh well.  

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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/2/2007 3:05 PM (GMT -6)   
Hey Tink,

Glad you finally got a proper dx. Nice to see you again.

For blood draws, make sure your are always well hydrated the day before and the day of the blood draw. That seems to help a lot.


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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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Date Joined Apr 2006
Total Posts : 1344
   Posted 10/2/2007 3:11 PM (GMT -6)   
I am a little confused.  If you have mctd then by definition you have lupus, scleroderma and polymyositis.  You might or might not exhibit symptoms of all of them and those symptoms can come and go.  U1 RNP antibodies are required for a diagnosis of mctd and anti U1-70 KD autoantibodies are often present. 
Treatment is pretty much the same.  Steroids are normally the protocol or possibly an immuno suppressant like methotrexate or imuran or a combination of them.  Some of us also get ivig for resistant cases.
My initial diagnosis was lupus and 2 months later mctd.  How special, I had both and scleroderma was thrown in as a bonus!
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

tink 2
Regular Member

Date Joined Jan 2007
Total Posts : 371
   Posted 10/2/2007 4:05 PM (GMT -6)   
I am not sure how to answer that one Bill . He said kinda the same thing. I am just going to wait and see what he says. I was told I have all of that by a Dr who is a infectious disease dr helping out in the Rhumy department. Found that out afterwards that is why I maid appointment with this DR.  I am just going to wait and see what the real Rhumy says. He sent the labs to California. I go back in 3 weeks.
Lupus since 2005, MCT since 2005 polymysoitis since 2005,Arthritis since2005 sjogren's syndrome since 2005, vertigo since 2006,migrains since 2006, diabetes since 2006, Depression since 2004. who would not be with all of this.
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
                   Have a great Lupie Day Denise 

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/2/2007 4:10 PM (GMT -6)   
Hi Denise! Well I'm glad you got into the doctor. Hopfully the blood work will give them some better answers and get you going on the right meds if you need to have them changed. Somtimes I think it's more frustrating after getting out of the doctors office than it is trying to get an appt:!
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

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