Hi. I am normally on the Ulcerative Colitis forum because my daughter has UC. However I was recently diagnosed with discoid lupus. I had what I thought was ringworm on my upper arms (where alot of people get tattoos). The dermatologist thought is was granuloma annulare but decided to take a biopsy. He was very surprised that it came back as DLE. He told me to get an ANA blood test to rule out SLE. I get bloodwork often because I was diagnosed 5 years ago with leukocytoclastic vasculitis. All my bloodwork has been coming back fine. I am going for the ANA bloodtest on Friday.
I have always had sensitive skin. Ever since I was younger (around 9-10 years old) I have reacted to various things off and on--sitting on the grass, the sun, the heat. For the past 10-15 years, I get a rash from the sun/heat on my cheeks, spots on my thighs above my knees (if I am wearing shorts), and spots on my forearms. Every doctor I have been to checks my bloodwork, but basically says I am just sensitive to the sun (I don't spend much time outside, I can get the rashes from being inside a car or just basic summer heat). The dermatologist doesn't see a correlation between any of my rashes and DLE. Most recently I have had red spots on my face (on the bridge of my nose near my glasses, by my ear, and most recently on my cheek). The dermatologist said it was rosacea, which I have never had. I have had some extra stress recently because my daughter's UC is flaring.
Sorry for the long rant. I guess I wanted to know if anyone has any insight into discoid lupus. The dermatologist said it is not SLE and there is a <5% chance of me getting it. Ironically (or not) I have had "borderline" blood tests come back as possible lupus about 12 years ago when I was pregnant with my youngest child. When retested (and since then) I have tested fine.
Thanks for letting me ramble. Any information about DLE is greatly appreciated.
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
hydrocortisone enema - alternating with Rowasa
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas! Summer 2007 - slowly began tapering Rowasa
Keeping our fingers and toes crossed!!
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortison enemas.