Abnormal cluster of blood vessels

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Date Joined Jun 2005
Total Posts : 541
   Posted 10/3/2007 9:14 PM (GMT -6)   
I can't remember if I posted here about this so I am going to again.  Sorry if this is a repeat.  I had a MRI done of my brain in June.  I was very sure that the results were going to be negative (I was having strange symptoms with headaches).  Anyway, when I went back for the results the neurologist said not to worry, but they found a cluster of abnormal blood vessels in the brainstem.  She said it was a benign condition and we would recheck it in 3 months.  I was shocked and kind of scared, too thinking I have an abnormal brain, no matter how benign it is. 
I had another MRI done on MOnday with contrast and I am going to see the Neurologist next Monday for the results.  Has anyone heard of this before or know anything about this condition?
Mary Ann

**Diagnosed MCTD(doctor now says it is Lupus),Fibromyalgia,Raynaud's June 2005
**Sleep Apnea - February 2006
**Congenital Heart condition-Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/3/2007 9:19 PM (GMT -6)   
Hugs to you Mary Ann . . . that really would be scary. My son had an issue with a scary MRI on his brain and it turned out to be a twisted blood vessel with no need to ever be concerned again . . . but it did have us frightened for a while until all the info was in.

Did they ever solve the headache issue??? I hope your neuro is personable . . .some of them can be pretty cold and techy. I hope someone else can answer your question, but it sounds like you might be first one here with that particular issue.

Keep us posted.


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Date Joined Jul 2005
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   Posted 10/4/2007 8:38 AM (GMT -6)   
Mary Ann, I don't know anything about what they found on your MRI, I just wanted to let you know that I hope it is nothing serious. I agree with you that anything abnormal with the brain sounds scary. Please let us know how things go on Monday - I hope you don't have to wait long for the results. You are in my thoughts and prayers.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
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Date Joined Mar 2006
Total Posts : 2608
   Posted 10/4/2007 10:04 AM (GMT -6)   
(((((Mary Ann))))) What a scary thing to go through. I pray that the neurologist finds nothing serious! Please keep us up to date!
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
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Date Joined Apr 2005
Total Posts : 1529
   Posted 10/5/2007 12:01 AM (GMT -6)   
Mary Ann,

What a worry and to have to wait makes it just that much harder to cope. I really hope that things turn out to be nothing that you have to be concerned about. Please let us know. We'll be wondering.

xoxo emmie

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

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