My doctors office called today. She has me scheduled with a pulmonologist for the 7th of nov. Somtime between now and than I have to have another lung function test done. Man I hate those things. Especially with the problems I have with the breathing already. So my rheumy appt is next week. I'm kind of going through a hope that I know I shouldn't get to hopful about
. If it's COPD there is a chance of a transplant but if it's lupus lung it knocks me off the list. However if it's COPD there is no cure except possible transplant. but if it's Lupus lung there is a chance they can help me and I can get off this breathing equipment. However I have heard some of the good stories here about
your lung problems and successes and bad stories here about
the downfalls of trying to heal the lungs. I guess I am just daring to dream that there is a chance that I can live without this oxygen all the time. It's terrible. I have to be so care if I go to somone house that they don't trip over more cordes so I lug a small tank with me instead of the big one. Than I have to make sure I have enough. and sleeping well there is a chore. If I roll around in bed to much the hose gets hung up in the blankets or wrapped around my legs. thank it gets tight and pulls against my face and hurts my ears. I can't even go camping anymore and it was one of the most enjoyable things I ever did. I want my lungs back! and I'm agry that the doctor just said I had asthma for 6 years just to find out I never had it. All this time wasted. They could have been doing somthing. It's my own fault for putting so much faith in my doctor. Now it's hard to beleive what any of them say. I want a 3rd 4th and 5th opinion before I beleive anything anymore.
ok well I didn't mean to rant but I guess I did anyway.
ahhhhhhhhhh I feel better now. Maybe I can get some sleep.
hopping down from my soapbox
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I