Posted 10/6/2007 11:02 PM (GMT -6)
Well, it might not be what you have, but there's a pretty good chance it is. Anything with inflammation, lupus and heart valves tends to be this endocarditis.
You mentioned that you hoped Emmi and I didn't have any complications from this. Well, I did unfortunately. The inflammation caused my valve to start to break off in microscopic pieces. Those little pieces of valve got into my blood stream and ended up in my brain, which caused my stroke. It was those little valve pieces and my antiphospholipid syndrome (APS - thick sticky blood) that caused the stroke. So there is something to talk to your rheumy about. Getting any inflammation down is very important. Do you have APS? Have you ever been tested? A simple blood test will determine if you have APS. I'm on blood thinners for life to keep my blood from clotting so quickly.
So it's good that you're seeing your rheumy soon. I don't want to alarm you or scare you. This occurance isn't common. But worth noting. You just can't be too careful, right? Knowledge is power when it comes to lupus!
You can email me any time if you want to talk about it more. I"m always happy to share more info if you need it okay!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in, to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus