Being tested for Lupus

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Date Joined Feb 2003
Total Posts : 16776
   Posted 10/9/2007 6:40 AM (GMT -6)   
Hello Everyone. I am new to the Lupus forum but not to HW. I post on the crohns & chronic pain boards. I recently was seen by a rheumy who is suspecting Lupus. I have had 2 positive ANA tests, but recently was tested and also had a positive SM/RNP Antibody. My dr says this another important factor. So far I have met 6 of the 11 points they go by.
He gave me some papers to read about Lupus and it appears to affect the joints pretty much. I can relate to that because of OA and crohns arthritis. He gave me a print-out sheet concerning medication he may be putting me on. He had more labs done there in his office. I go back to him towards the end of the month.   
Any info anyone thinks I may need please post it.  Susie

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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/9/2007 8:16 AM (GMT -6)   
Hi Susie!! Welcome to the forum!

So sorry you have overlapping diseases. I'm hoping that the meds for one are helpful to the other issues. I have read that the largest portion of our immune system is in the digestive tract, so its logical that lots of us have GI issues.

I encourage you to read the info "Lupus Resources" posts. We've found that we can post some sticky messages to tag onto the one that Peter started. So we've gathered quite a bit of help right there. The link is in my signature along with some other links that will be helpful to you.

Knowledge is power . . . so learning all you can about your health issues will prove to be very helpful in talking to your doctors and trying to figure out how to deal with all of your symptoms.

You will hear lots here about "pacing yourself" . . . we tend to have limited energy and most of us find that we really get into trouble when we push too hard and do too much. So knowing your own limitations is invaluable.

I hope you make some great friends here. Keep us posted about your doctor visits.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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Date Joined Jul 2007
Total Posts : 1048
   Posted 10/9/2007 12:32 PM (GMT -6)   


     Welcome to the forum.  My brother has Crohn's and had UC.  He had a totally colectomy when he was about 20.  I'm sorry to hear that you possibly have Lupus too.  You certainly have enough to deal with already.  Take care of yourself.  God Bless You,  Judi

Regular Member

Date Joined Jul 2007
Total Posts : 261
   Posted 10/9/2007 3:43 PM (GMT -6)   
Hi, Susie and welcome. I have lupus and my dad has Crohn's. SO sorry you may have both. It's very valuable to read all the info. you can get your hands on regarding lupus, like others have already noted. It is such a difficult disease. Many things can be effected so each person could probably tell you of different ways or systems in their bodies it effects. Rest does seem to be a main key. Fatigue is a big complaint among many. There are also GI issues. Several organs can also be involved including the brain. Hopefully, with the other problems you are already dealing with if you have lupus, maybe it will be a mild case. Please keep us updated,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

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Date Joined Mar 2006
Total Posts : 2608
   Posted 10/9/2007 6:28 PM (GMT -6)   
Susie, welcome to lupus at HW. Even though I'm sorry you may have lupus, I'm glad you've found this wonderful site. Since you've been dealing with chronic pain and crohn's, I'll bet you have a lot to contribute to us too.

What meds is your doctor thinking about starting you on? I look forward to getting to know you.

Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

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