Posted 10/10/2007 9:46 PM (GMT -6)
Congratulations on not having lupus, sorry about the PBC. Liver disease is a real pain sometimes and actually runs with a lot of ofther AI problems. Even endocrine problems. In a way, its another type of lupus, but not as bad usually short term. It can drag on and on till you're an old granny with a liver like shoe leather and you can still be up and kicking. It's amazing how much abuse our livers can take, after all, look at all the meds we take that hurt them. Its good he found out the right thing. My liver problem also causes sjogrens, and my mistreatment for my liver condition in the past could have caused lupus, it certainly made me much sicker. The only thing I can really say that is negative that happens with people with any type of liver problems is that they try to deny you pain medicine and expect you to suffer more, because they consider pain management the least important part of treatment usually and they want you to keep off everything. Diabetes tends to run with liver problems, as does high cholesterol, and you have to be very picky about which meds to take if you get these problems, because many will make your liver condition worse. The key is to get a really good hepatologist, not a gi guy but someone that specializes in livers, unless the gi comes extremely highly recommended. I go to Borland-Groover every year or so and it is a research clinic that only does GI and specializes in livers and they are up on all the latest advances. It's good to go to a place like that at least once a year to make sure your doc is up on things because I always get new info when I go. For my family, complications from liver disease tend to shorten our life spans by twenty to thirty years, but treatment is getting much better so I think this will change, I also have a different problem (NASH). Not much is known about NASH and NAFLD but as many as one in four people with NASH will go on to get liver transplants. I can tell you that prednisone helps me a TON, including my liver, and also that I have multiple endocrine deficiencies which is common with NASH. Well, take care and its a good thing the doc found the PBC,you might want to check the incidence of the various ai diseases with PBC just to be sure before you discontinue meds, especially if you have other non-liver related problems. Hopefully you'll get treatment and now they can really get you the right tx. I'm happy for your proper diagnosis and wish you the best on you liver. It must feel good to be home, I think that's the best part of vacations.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments