Yeah, I think that you see a hepatologist, but the rheumy may even be the one to treat it. Alot of the liver diseases cause lupus or lupus like problems, though usually your anti-ds-dna is negative because you have secondary lupus, although if it gets bad enough you may develop anti-ds-dna over time, from what I glean through my purusings. I got some narcotics so life is better, for a week or two anyway, and that is long enough to get me to the new endo and hopefully find out and deal with cushings wheich means regular pred, which would be wonderful. The NASH I have--non-alcoholic steatohepatitis, causes lupus like problems, hashis, pituitary and hypothalmic deficiencies, diabetes, obesity, gi problems, gerd, and other wonderful things. Histamines, the things that cause allergic reactions, come from your liver, are triggered by your liver (histo meaning liver, like histology) anyway, it makes sense because the liver decides if what is in your blood is good or bad as it filters toxins from your blood. Its like the clearing house for all the junk in your blood, so liver is very key in this stuff, I would think. Please remember that your liver function is really effected by the types of meds you take, avoid NSAIDs and COX2 type pain relievers. Ultram is the only non-narcotic pain reliever besides and occasional tylenol, that I can take. Ibuprofin is a definite no no no matter what any fool says, a hepatologist will tell you that, though most other docs think tylenol is worse. Tylenol is actually the safest, but overdoses of it are very bad for the liver and they used to think it was completely safe and found out it isn't, but it is the lesser of the evils. Ultram has none of that stuff in it. Best pain stuff is narcotics, with least amount of tylenol in it. Medicines taken by mouth will irritate liver, those taken by other means, patch, nasal spray, eye drops, IV or IM will cause less problems for me. Any med I start I take a half dose and only raise it if my symptoms are not controlled and I'm not having a bad reaction. A bad reaction (hives, etc.) may not occur for two months or more, as it may take that long for the medicine to back up in your system. Effexor was bad on my liver, though I was able to take it for about
six months or more before I became intolerant and allergic. I don't know what Evista or Triamterene are but you might want to check on them and see if there is a more preferable medication to take, one that is processed by kidneys more than liver. The cool thing about
plaquenil is that it is processed by kidneys primarily and may prevent cancer by suppressing TNF (tumor necrosis factor) per a post of a press release here. I find prednisone helps my liver. I don't think docs know a ton about
these liver autoimmune complexes so I would definitely keep checking the web for new advances. Borland Groover's site has a lot of good timely info. Also, your COPD may be related to the liver, I also have it with its onset concurrent with onset of my liver disease. Asthma is caused by histamine reactions like an allergic reaction, eventually bronchial tubes get scarred due to constant allergic inflammation.
Rosie, if they drained it in a day, they did it with a needle likely, from the belly. I don't know what they do for legs. The swelling in the belly can actually press on organs and make you sick and I think even be life-threatening depending on what it presses on. I'm glad they got rid of that. She must be feeling better. Now hopefully with drugs they can keep it off.
Take care Carol, Rosie, and know you are in my thoughts and prayers. Carol, you can try the hepatitis group here for some questions, though there are some very very sick people there and sometimes it is hard to get responses, there are some really caring people there. When I was sick, I didn't like to reply to certain questions because I didn't want to scare them because I was so sick and my prognosis was not good at the time.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments