Posted Today 11:49 PM (GMT -6)
Thanks so much Kristin for replying. Does the strattera cause you to have seizures? My son's doc is afraid to give it to him for that reason, but his seizures are so well under control that I almost wish she would try. I'm allergic to it, unfortunately. I also have halos and intermittent blurriness and fear losing my vision. I had PRK vision correction surgery and that gave me some halos at night, but it also taught me something about halos. The surgeon said that the reason I would have halos is that I have naturally big pupils/more dilated than most peoples. Of course, my medication makes it worse sometimes. Now I have halos all the time and blurriness that comes and goes. I would definitely try some natural tears for that and see if it improves at all because the drynesss of my eyes from sjogrens really blinds me and I cant read signs and stuff. Some of the blurriness is probably also from plaq. Hopefully, your vision problems are medicine related and can be fixed, like superdilation, dryness, and whatever else. I hope so much you are not losing your eyesight. I was blind as a bat for so long and wearing glasses even with the lightest plastic lenses was an impossibility, I had coke bottle contacts! I'm still having those raw patches too in my gi tract with no apparent cause other than maybe AI disease. My son is really driving me nuts lately and is on probation with me this week. He has taken it upon himself to find a sleep aid and I'm not very happy about it. He's hoping to talk to his doc about gettin on ambian so his Adderall doesn't keep him up all night, but is using something else in the interim and I'm furious. I think he does have depression, but he doesn't when he takes his Adderall, he just refuses to take it alot and makes really bad decisions. I thought about getting him into the psychiatrist, but he has a lot of allergies and problems with psychiatric drugs, especially with them triggering seizures. I understand how you feel and appreciate your input, I went through the same thing myself only at fourteen, and lived away from home until much later in life, and eventually friends did take me in, but Ihad some horrible experiences in the meantime. That is why I drag my heels with my son. I explained to him tonight about alot of things, especially employment problems for him, for various reasons. He's sweet on his adderall but doesn't talk much and he says that he hates that. But he's negative and depressed without it. I liked strattera alot, and was mad I was allergic, I got real bad reaction. Medicaid won't pay for it, but he can get patient assistance. I wish he could try it but with a heart condition and epilepsy, I'm scared, but it would be good because it has an antidepressant effect to it to and you can sleep and all. But heck, you have a bunch wrong and can take it, so maybe it would work. At least we could try. Also, I considered the addition of a anti-nausea medicine maybe because both his epilespy med trileptal and his adderall make him nauseaus and he does't want to eat and since many anti-nausea drugs make you sleepy, maybe something like that would work instead of an addicting sleep aid. Is ambian addicting? Anyway, I hope all goes well at the eye doc. You might want to have them do a gallium scan to look at your lacrimal glands, because mine were hugely inflamed due to sjogrens and I think it causes pressure on my optic nerve. Of course everything is great on prednisone!
I'm glad you understand my fear of pulling the rug out. I know he needs help, I just need to get through the maze of his medical problems and attitudes and moods to figure out what kind. Unfortunately, the mental health system here is absolutely horrible and the state mental hospital wiil no longer treat my son because they claim no matter how suicidal he is he has only medical and substance abuse problems and is non-compliant and drug seeking (because none of the drugs worked like they were supposed to on him). The real reason is because of the epilepsy and heart condition, they sent him home wetting himself one time, on a huge dose of neurontin and he had a huge seizure two weeks later and tried to set himself on fire after that as a reaction to the neurontin. It made him really crazy, so I hate that medicine. Also, the rehab wont take him because they claim he is noncompliant and they have done all they can do and his attitude is poor, but really it is because of the health issues and his need for frequent medical attention and medications and they don't allow him his ADHD med. He's not so nuts and drug seeking now that he is on epilepsy medicine, its just he didn't know he had it and felt really anxious and awful and was seizing and we didn't know it and was doing crazy stuff and mental health was giving him meds that made him worse. ONce his epilepsy was dx and treated, I got my son back. I was so scared that he would end up institutionalized or dead--he was just out of control--his epilepsy is in his parietal lobe so it effects his reasoning and he makes crazy decisions, very nihilistic and emotional. Its very weird. And he has grand mal seizures with heart complications and usually swallows his tongue and can easily die, so I'm scared to be away from him for too long. I'm glad you understand this Kristin. He is so bright, really outstanding, and he was telling me today that he is flunking out because he is stupid and just can't handle school, that he's not good at school due to his problems, and I felt so bad because it's not fair and he is good at school if they can just get his medicine straight. I think I got him reconvinced again of that, he needs to go to school, he will not be fulfilled without it,he is so bright, he just needs the help other people in his position get. The disability office has denied him twice and we are now looking at legal action. They know he is depressed from his grades and not savvy at dealing with bureaucracy so they just blow him off and throw obstacles in his path. I'm so mad, but they won't talk to me so my hands are tied. I need to go in as his advocate somehow, I don't know how, maybe in writing. Well, I'm going to crash, I got some pain meds finally broke down and got them and am doing better, till they stop working again. Well, I will pray for you and especially for you eyes and gi and hope you feel better. I really wish I could get them to test my son for CNS lupus. Take care Kristin, you are so sweet, taking time when you are so sick, and I think you really understand my son's issues so it really helps me so much. If I had one wish, it would be that my son was healthy, and if I had a disease to get rid of for him, I think it would be the ADHD. He has it so so bad. The rest, he deals with ok, they don't bother him as much, but the ADHD just has no good treatment.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments