I'm going to rock the boat a bit here! I know why rheumatologists don't treat the numbers. They aren't always trustworthy. Your sed rate of 20 is normal. A sed rate of 30 isn't bad. If your sed rate was climbing into the 70's or higher, then your rheumy might look a little more closely at it. The sed rate is not a good indicator of inflammatory processes. My rheumy and family doctor pointed that out to me again this go round. I just went through a flare up in my lupus and my sed rate was 8. Well within normal ranges. In fact, all of my blood work came back perfectly normal, but I was feeling FAR from normal in every way. We upped my prednisone and I got through the flare in 3 weeks. But we never went by what my blood tests said, or my normal urine tests. We went with the symptoms and how I felt. Same goes for your ANA. Lots of us have a negative ANA, but with all the criteria of lupus, and other positive antibody tests. So the ANA can make a diagnosis harder to get too.
Lupus, if you have it, is very unpredictable and can make a real liar out of you, hehe! You feel like poop, but your bloods and urine look like a healthy normal person. That is how autoimmune diseases work. They stink!
So, I do agree with the other ladies. A second opinion would be worth it. Also, keep a daily diary of all your symptoms, how you feel, etc, etc. That will help when it comes to explaining everything to your next doctor. If you see a strange rash anywhere, take a picture of it. Lupus is like gathering evidence from a crime scene!
You're wise to listen to your gut on this. Get another opinion for sure. Just remember that the numbers don't always tell the story.
Keep us posted!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in, to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus