Have they done blood work for APS? or Anti-cardiololipids?? Both of these issues cause thick blood which can cause strokes and other problems as well as headaches. Pretty simple to check.
You sound overwhelmed . . .sorry this is so hard . . . but you need to keep good records of your symptoms which means that you need to know that every little thing is a clue for the doctor to help piece this together. There is a really good post in the topic "Lupus Resources". Start there and read the post about
suggestions to new members. There is a link in my signature. Along with a link to the Lupus Foundation website which has lots of good info.
If you don't have a primary care doctor (pcp) you can start there, but if you do have good reason to think it is lupus, you eventually need to find a good rheumatologist who is knowledgeable about
lupus. There is another link in my signature to find a Lupus Chapter near you. If you call them or email them, they can provide you with a list of rheumatologists in your area who want to treat Lupus patients.
Knowledge is power so learn all you can and bring good notes with you. I recently did a long post on how to make notes for a doctor appointment. If I can find it, I'll post it here.
The others will be along with more suggestions . . . but reading lots here will really help.
Keep us posted.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator