What is a flare for you?

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Regular Member

Date Joined Dec 2005
Total Posts : 65
   Posted 10/11/2007 9:13 AM (GMT -6)   
I am just wondering what a flare up means to you. I guess I am asking because I am not sure if I have had one since I was diagnosed a year and a half ago. Don't get me wrong, I ache and get exhausted enough to sleep 16 hours a day once in awhile (especially after a night out) but that's about it so far.....

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 10/11/2007 6:21 PM (GMT -6)   
Kelly, it's hard to say exactly what a flare is, but for me it's when things get a lot worse than the "normal" pain and fatigue of lupus. My pain level and fatigue increase, my malar rash gets worse, I get headaches and I get fevers. Sometimes I'll get mouth sores and swelling in my joints.

Sometimes labs will show if you are in a flare, but labs can be pretty unpredictable and sometimes turn out looking fine even when you are feeling absolutely awful.

I hope this helps. It's kind of a gray area and maybe someone else will maybe have a more concrete definition of a flare.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 10/11/2007 7:37 PM (GMT -6)   
Hi Kelly, like Hippi said a flare is usually when your day to day symptoms get worse or you have new symptoms to pop up. I have recently learned how to look at my labs and know when my lupus may be "stirring about". I usually get mouth sores, GI issues, increased fatigue and joint pain but it can be different for each of us.

I hope this helps! Take care

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 10/11/2007 9:52 PM (GMT -6)   
Hi Kelly, like hippi and stacie said, you just feel much worse. sometimes it creeps up on you, especially if you are sedentary like me and you can find yourself really sick and not remember getting there. My face is the real indicator for me, red, red and chipmunk cheeks and puffy all around my face and neck, sometimes the red goes down into my chest. Usually something hurts, gi pain, urinary, back, joints, something hurts. I don't run fevers, my temp goes low because I also have endocrine problems. And the other main thing is just plain really bad fatigue. But most of the time for me it creeps up so gradually and never seems to go away, so that I really notice when my face is really red and I catch sight of it in the mirror and say, "oh my!".
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Regular Member

Date Joined Dec 2005
Total Posts : 65
   Posted 10/12/2007 9:04 AM (GMT -6)   
Thanks everyone! I may have had some flares then because there are days where my joints ache much worse than normal as well as the fatigue. My Mlar rash seems to get much worse at times as well. What do you mean by mouth sores? A lot of people seem to say that but I am not sure if I have them....

Regular Member

Date Joined Dec 2006
Total Posts : 239
   Posted 10/12/2007 10:31 AM (GMT -6)   

I tend to get what I call a "mini flare" about a week before my period.  My fatigue level is far worse than normal and my hands and feet get very sore.  I also feel a burning sensation across my shoulders and in my legs along with very low grade fevers.  Nothing thats not tolerable but it can be draining.  I have never gotten a rash or any type of sores (thankfully!) but I do feel much worse.  I also tend to feel worse in the winter when it is terribly cold out. 

I got a cold at the tail end of our vacation last month and it has been lingering.  The cold combined with my monthly "mini flare" has really did me in this month.  I have scheduled labs and a rheumy visit mid Nov. so I will try and hold off until then.  It doesnt help that I have been swamped with my work so I need to try and take it easy when I can.

Regular Member

Date Joined Dec 2005
Total Posts : 65
   Posted 10/12/2007 10:38 AM (GMT -6)   
Last year I got a flu and pneumonia shot! They helped a lot. The winter was AWFUL for me last year. My hands turn white and it's called something but they freeze. I couldn't kick bronchitis most of the winter. I live in New England so it's COLD here in the Winter. I should move to Florida, LOL.

Anyways thanks for all the info!

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